Internet-based data inclusion in a population-based European collaborative follow-up study of inflammatory bowel disease patients: Description of methods used and analysis of factors influencing response rates

作     者：Frank L Wolters Gilbert van Zeijl Jildou Sijbrandij Frederik Wessels Colm O'Morain Charles Limonard Maurice G Russel Reinhold W Stockbrügger 

作者机构：Department of Gastroenterology and Hepatology Centre for Data and Information Management Global Vitis Adelaide and Meath Hospital 

出 版 物：《World Journal of Gastroenterology》 (世界胃肠病学杂志（英文版）)

年 卷 期：2005年第11卷第45期

页      面：7152-7158页

核心收录：

学科分类：1002[医学-临床医学] 100201[医学-内科学(含：心血管病、血液病、呼吸系病、消化系病、内分泌与代谢病、肾病、风湿病、传染病)] 10[医学] 

基　　金：Supported by the European Commission as a fifth framework shared cost action (QLG4-CT-2000-01414) 

主　　题：欧洲 肠炎 病理机制 治疗 临床表现 

摘      要：AIM: To describe an Internet-based data acquisition facility for a European 10-year clinical follow-up study project of a population-based cohort of inflammatory bowel disease (IBD) patients and to investigate the influence of demographic and disease related patient characteristics on response ***: Thirteen years ago, the European Collaborative study group of IBD (EC-IBD) initiated a population-based prospective inception cohort of 2 201uniformly diagnosed IBD patients within 20 welldescribed geographical areas in 11 European countries and Israel. For the 10-year follow-up of this cohort, an electronic patient questionnaire (ePQ) and electronic physician per patient follow-up form (ePpPFU) were designed as two separate data collecting instruments and made available through an Internet-based *** demographic and clinical determinants of ePQ participation were analyzed using multivariate logistic ***: In 958 (316 CD and 642 UC) out of a total number of 1 505 (64%) available IBD patients,originating from 13 participating centers from nine different countries, both ePQ and ePpPFU were completed. Patients older than 40 years at ePQ completion (OR: 1.53 (95%CI: 1.14-2.05)) and those with active disease during the 3 mo previous to ePQ completion (OR: 3.32 (95%CI: 1.57-7.03)) were significantly more likely to ***: An Internet-based data acquisition tool appeared successful in sustaining a unique WesternEuropean and Israelian multi-center 10-year clinical follow-up study project in patients afflicted with IBD.