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Assessment of a Multimodal Strategy for Information and Collection of Advance Directives in a Comprehensive Cancer Center:description of the Study Protocol

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Psycho-Oncologie 2024年第4期18卷 367-375页

作者： Léonor Fasse François Blot laboratoire psychopathologie et processus de santé(UR 4057) Institut de PsychologieUniversitéParis CitéBoulogne92100France Département Interdisciplinaire d’Organisation du Parcours Patient Institut Gustave RoussyUniversitéParis SaclayVillejuif94805France

Background:Information on the possibility of drawing up Advance Directives(AD)is a necessity,and represents a major medical,ethical,and legal *** difficulties are numerous,both organizational and cultural,and this is also true in the context of oncology,where ADs(and more broadly,advanced palliative care)are of critical *** an eminently sensitive subject,dealing with ADs(and therefore with end-of-life issues)requires both societal and medical/health-care *** institutional approach has therefore been developed,to deploy information tools,training professionals,and formalize the collection of *** an approach cannot be implemented without an assessment not only of its objective results but also above all of its psychological effects,on both users(patients,family caregivers)and ***:This longitudinal study,based on a mixed-method,interdisciplinary approach,will assess the impact of this information dissemination on AD,in terms of both potential positive and negative effects,using validated measurement ***,this study follows the 5 criteria of the RE-AIM model,designed to analyze the interest and impact of a device intended for users of the healthcare system;we will use a mixed methodology,relying on both a quantitative component(counting the number of people benefiting from the scheme,and those requesting support in drawing up their DA...,administering questionnaires),as well as a qualitative component(focus groups)which will enable us to study the subjective experiences of users,their relatives and the professionals involved in the ***:The results of this study will make it possible to determine the effects of this system of assistance in the drafting of ADs,which is currently being promoted by the legislator,but which is struggling to be implemented.

关键词： Advance directive cancer palliative care living wills end of life shared-decision making

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Expérience des parents faceàl’accompagnement pédiatrique en HAD:étude exploratoire qualitative Parents’Experience of Pediatric Home Care:A Qualitative Exploratory Study

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Psycho-Oncologie 2024年第2期18卷 137-146页

作者： Laure Salomé Jérémy Martin Camille Baussant-Crenn Cécile Flahault Institut de psychologie UniversitéParis CitéBouologne-Billancourt92774France Fondation Oeuvre de la Croix Saint-Simon Service d’hospitalisationàdomicileParis75019France laboratoire de psychopathologie et processus de santéUR4057 UniversitéParis CitéBoulogne-Billancourt92774France

Aim:To investigate parents’experience of home care for children in oncology in order to identify the benefits,expectations,and possible difficulties *** and methods:A qualitative method was adopted,with non-directive interviews conducted with nine participants,then analyzed using thematic content ***:The main recurring themes in the discourse include:(1)relief,(2)positive representation of home,(3)positive representation of home care,and(4)negative representation of home *** these parents,home care appears to be positive overall,even though the introduction of home care is often reported as a source of stress for ***:These results must be interpreted with caution,but they do support previous research and highlight certain recommendations for further improving this experience,particularly for parents,but also for the sick child and the family.

关键词： Home care parents oncology pediatric children

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Conducting Multi-Inter or Transdisciplinary Research in Oncology:What to Expect?How to Prepare?

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Psycho-Oncologie 2024年第4期18卷 377-379页

作者： Cassandra Patinet Diane Boinon Sylvie Dolbeault UnitéTransversale de Recherche en Psychogénèse et psychopathologie UniversitéSorbonne Paris NordVilletaneuse93430France Centre Hospitalier Intercommunal de Créteil Unitéde médecine de l’adolescentCréteil94000France laboratoire UTRPP UniversitéSorbonne Paris NordVilletaneuse93430France Gustave-Roussy Unitéde psycho-oncologieVillejuifF-94805France laboratoire de psychopathologie et processus de santé UniversitéParis CitéBoulogne-BillancourtF-92100France Psycho-Oncology and Social Service Supportive Care DepartmentInstitut CurieParis75005France

Introduction La modification du regard portésur l’objet«soin»affecte les pratiques de soin,dans une réflexion non plus uniquement centrée sur le remède,sur le soin en tant que«cure»,mais sur«la façon dont on donne le soin»[1]au sens oùWinnicott entend le《care-cure》[2];favorisant ainsi le développement de pratiques de soin innovantes,portée par une réflexion collective et pluridisciplinaire autour des *** le soin en oncologie ne peut plus se penser ni se pratiquer en dehors d’une rencontre pluridisciplinaire autour du patient,il en va de même pour la recherche dans le domaine du cancer.

关键词： naire des collective

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Mener des recherches pluridisciplinaires en SHS dans le domaine du cancer:quels leviers,quels freins?Conducting Multidisciplinary SHS Research in the Field of Cancer:Strengths and Barriers?

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Psycho-Oncologie 2024年第2期18卷 101-107页

作者： Sylvie Dolbeault Manon Fontaine Diane Boinon Service Psycho-Oncologie et Social Département de Soins de SupportInstitut CurieParis75005France SHARE PSL UniversityParis75005France CESP UniversitéParis SaclayVillejuif91190France Institut la Personne en Médecine Institut de Recherche Saint LouisUniversitéParis CitéParis75013France Institut de Psycho-Oncologie Gustave RoussyVillejuif94805France laboratoire de psychopathologie et processus de santé UniversitéParis CitéBoulogne-Billancourt92100France

This paper summarizes the work held at the Cancéropôle Ile-de-France's annual SHS research seminar on the theme:Pluridisciplinarity and methods for SHS research in thefield of *** clarifying the concepts of pluri-,inter-,and transdisciplinarité,it aimed to describe how this type of research is carried out in practice,addressing successively:the role of stakeholders and their respective positions,the need for a shared language,the various temporalities involved and task sharing,the interview and analysis methods as well as the implication of *** highlighted the personal qualities required to practice this type of research,such as psychologicalﬂexibility and adaptability,a strong desire for collaborative work,acceptance of risk,and a humble stance.

关键词： SHS research interdisciplinarity pluridisciplinarity strengths and barriers oncology

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Pour un accompagnement des familles endeuillées avec un enfant en basâge Supporting Bereaved Families with Young Children

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Psycho-Oncologie 2024年第3期18卷 201-211页

作者： Marthe Ducos Voskan Kirakosyan Nathalie Duriez Centre de Lutte Contre le Cancer Institut BergoniéBordeaux33063France CAPS Composante URm RPpsy—15297 Universitéde PoitiersPoitiers86000France laboratoire psychopathologie et processus de changement(LPPC)—UniversitéParis 8 Paris75001France Groupe SOS Solidarité Pôle Addiction IDFCSAPA SOS 75 Site MonceauParis75001France

Objective:The violent death of a young parent from cancer has a profound effect on both spouse and *** family must adapt to the absence of the bereaved and reorganize to raise the children as best they *** young children are particularly vulnerable,as they are generally unable to express their *** give them a voice,we have designed an innovative system,The Little Match Girl,as part of a health democracy ***:We assessed the effects of their participation in the group for a population of eight children and their *** six parents assessed their child(ren)’s emotion regulation before and after therapy using the ERC-vf *** FACES IV enabled us to assess the cohesion and adaptability of each ***:All eight children showed improved emotion *** program promotes family ***,difficulties persist in rigid or disengaged ***:We hope that other cancer centers will follow our model to give a place to very young children dealing with the death of a parent from cancer,and to encourage family empowerment.

关键词： Cancer bereavement in young children emotion regulation health democracy discussion group

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The multifaceted question of the prescription of antidepressants during pregnancy

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上海精神医学 2013年第5期25卷 317-318页

作者： Gisèle Apter Emmanuel devouche Erasme Hospital Psychiatry and Psychopathology Research Institute Paris France University Paris Diderot Paris France. Erasme Hospital Psychiatry and Psychopathology Research Institute Paris France University Paris Descartes Laboratoire Psychopathologie et Processus de Santé Paris France.

Pregnancy has long been considered a period of bliss,free of psychiatric *** was even supposed that if such conditions preexisted,they would momentarily be miraculously suspended.[1]Numerous studies have now shown tha... 详细信息

关键词：怀孕期间抗抑郁药处方精神障碍精神分裂症抑郁症 TSL

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Exploratory Study of Intolerance of Uncertainty and Its Cognitive Processes by the Stroop Task among Parents of a Childhood Cancer Survivor

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Psycho-Oncologie 2023年第4期17卷 257-266页

作者： Marie Vander Haegen Anne-Marie Service de Psychologie de la santé/Unitéde Research Unit for a Life-Course Perspective on Health and Education-(RUCHE ULiège)University of LiègeLiège4000Belgium

*** study has examined the relationship between the factor of intolerance of uncertainty and its effects on the cognitive processes among parents of a childhood cancer *** of uncertainty is a central factor in generalized anxiety disorder;an anxiety disorder in which impaired processing of cognitive information in the form of cognitive biases is also *** aim of the study was to measure,via a classical Stroop test and an emotional Stroop test,the orientation of selective attention in relation to the uncertainty intolerance ***.61 parents of a childhood cancer survivor(aged 4 to 6 years)were recruited from hospitals in the Province of Liege(Belgium).Parents completed questionnaires on intolerance of uncertainty and its associated factors(i.e.,usefulness of worry,cognitive avoidance,problem-solving attitude,and ruminations)and performed a Stroop test and an emotional Stroop *** correlations and multiple linear regressions were *** results indicated positive and significant correlations between the emotional Stroop(negative interference index)and intolerance to uncertainty but also with repetitive thoughts(ruminations)and *** regressions showed that depressive symptoms seem to contribute to explaining longer latencies for the interference condition(color word written in another color).*** have been published to improve the management of parents of a childhood cancer survivor,but parent-centered neuropsychological studies are still needed and should be developed to improve prevention and detection initiatives for these families.

关键词： Parents childhood cancer survivor Stroop intolerance of uncertainty

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processus pour le développement d’une stratégie d’évaluation de la qualitéde vie en cancer avancépédiatrique Process for developing a Quality of Life Assessment Strategy in Advanced Pediatric Cancer

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Psycho-Oncologie 2024年第2期18卷 127-135页

作者： Lye-Ann Robichaud Marianne Olivier-D’Avignon Julie Felipe Hermann Ferdinand Thomas Ehrenfeld Marc-Antoine Marquis Bruno Michon Émélie Rondeau Mathias Tyo-Gomez Michel Duval Serge Sultan Département de Psychologie Universitéde MontréalMontréalH3C 3J7Canada Centre de Recherche Centre Hospitalier Universitaire(CHU)Sainte-JustineMontréalH3T 1C5Canada Centre de Psycho-Oncologie(CPO) CHU Sainte-JustineMontréalH3T 1C5Canada École de Travail Social UniversitéLavalQuébecG1V 0A6Canada Département de Pédiatrie Universitéde MontréalMontréalH3T 1C5Canada Département de Pédiatrie Générale CHU Sainte-JustineMontréalH3T 1C5Canada Centre Mère-enfant Soleil CHU de Québec-UniversitéLavalQuébecG1V 4G2Canada CHU de Québec-UniversitéLaval QuébecG1V 4G2Canada Patient Partenaire CHU Sainte-JustineMontréalH3T 1C5Canada Département d’Hémato-OncologIe CHU Sainte-JustineMontréalH3T 1C5Canada

In pediatric advanced cancer,i.e.,when cancer-targeted treatments are not effective,care provided to patients is of palliative *** aims at limiting symptoms and optimizing quality of life(QoL).To orient care,it is necessary to know and measure what is really important for young ***,tools are still scarce in this *** aim of this paper is to describe the development process of a new QoL assessment method,the Advance QoL *** is specifically designed for the clinical context of pediatric advanced *** previous studies carried out by our team identified seven important QoL domains for this *** developed a tool named Advance QoL—parent/caregiver version.A current study aims to develop self-reported versions of the Advance QoL for children(8-12 years)and adolescents(13-18 years)with advanced *** the very near future,the Advance QoL tool will be available in three versions(parents/caregivers,children,and adolescents)ready to be tested in validation *** assessment of the QoL of young people with cancer is a central process in defining targets for care and should be carried out throughout the trajectory,including when cancer is at an advanced stage,i.e.,when no standard treatment options are available.

关键词： Pediatric cancer advanced cancer palliative care quality of life measures

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Promoting Health democracy

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Psycho-Oncologie 2024年第1期18卷 5-7页

作者： Sabine Dutheil Marie-Frédérique Bacqué Kristopher Lamore Clinique Tivoli LISAL’Institut du Sein d’AquitaineBordeaux33300France UR3071 Universitéde StrasbourgStrasbourg67000France University.Lille CNRSUMR 9193—SCALab—Sciences Cognitives et AffectivesLilleF-59000France

Introduction,L’histoire de la démocratie sanitaire-devenue par un glissement sémantique la démocratie en santé-est un long processus encore et toujours en marche de la relation entre les citoyens et leur système de santé[1,2].Cette relation aétéet continue d’être influencée par des changements sociétaux majeurs au cours des dernières décennies.

关键词： des continue relation

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