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International Journal of Nursing Sciences 2018年第2期5卷 193-200页

作者： Shahriar Salehitali Fazlollah Ahmadi Ali Hasanpour Dehkordi Kobra Noorian Malek Fereidooni-Moghadam Kouroush Zarea Nursing Department Faculty of Nursing&MidwiferyShahrekord University of Medical SciencesShahrekordIran Nursing Department Faculty of Medical SciencesTarbiat Modares UniversityTehranIran Nursing and Midwifery Care Research Center Faculty of Nursing and MidwiferyIsfahan University of Medical SciencesIsfahanIran Nursing Care Research Center in Chronic Diseases Ahvaz Jundishapur University of Medical SciencesAhvazIran

Objective:The aim of this study was to explore the burden of care for patients undergoing hemodialysis from the experiences of family ***:In this qualitative study,a content analysis approach was used for data collection and *** were 16 family caregivers selected through purposive sampling from four medical education centers affiliated with Ahvaz Jundishapur University of Medical Sciences,***-structured interviews were held to collect ***:Four categories were developed as follows:‘care challenges’,‘psychological vulnerabilities’,‘the chronic nature of care’and“care in the shade”.The categories led to the development of the main theme of‘progressive exhaustion’experienced by the family caregivers during the provision of care to patients undergoing ***:family caregivers have a significant role in the process of patient care,and this role leads them to progressive exhaustion;therefore,the overall health of the caregivers should be taken into account and more attention should be paid to their quality of life,social welfare,and satisfaction level.

关键词： family caregivers Hemodialysis Progressive exhaustion Qualitative study

The lived experience of family caregivers caring for patients dependent on life-sustaining technologies

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International Journal of Nursing Sciences 2018年第4期5卷 365-369页

作者： Waraporn Kongsuwan Pongpaka Borvornluck Rozzano C.Locsin Adult and Elderly Nursing Department Faculty of NursingPrince of Songkla UniversityHat YaiSongkhla90112Thailand Medical Equipment Center Department of NursingSongklanagarind HospitalFaculty of MedicineHat YaiSongkhla90112Thailand Institute of Biomedical Sciences Tokushima University Graduate SchoolTokushimaJapan Florida Atlantic University Boca RatonFL33431USA

Purpose:The purpose of this study was to describe the meaning of the lived experience of family caregivers caring for their loved ones who were dependent upon life-sustaining technologies while in the ***:This study followed van Manen's hermeneutic phenomenological approach to generate and analyze data to describe the experience of ten family caregivers who met the following inclusion criteria:a family member who participated actively in caring for the loved one who was dependent upon technologies for human *** were collected using individual in-depth *** interview transcriptions were analyzed using van Manen's phenomenological approach,while Lincoln and Guba's criteria were used to establish trustworthiness of the ***:Four thematic categories structured the meaning of the experience:Being an invisible person;supporting patients'wholeness;struggling to trust technologies for human care;and living in *** thematic categories were reflective of Van Manen's four lived worlds of body,relation,space,and ***:Understanding the experience of family caregivers challenges nurses to express their technological competencies in caring more fully in their human ***'s theory of Technological Competency as Caring in Nursing was used to explain and describe the meaning of the experiences of family caregivers caring for patients who were dependent upon technologies for human care,and foster nursing practice as caring in nursing.

关键词： Caring for family caregivers Phenomenology Technological competency

Psychological distress, family functioning, and social support in family caregivers for patients with dementia in the mainland of China

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Chinese Medical Journal 2013年第18期126卷 3417-3421页

作者： ZHANG Hong XIONG Rong-hong Sara Hujiken ZHANG Jun-jian ZHANG Xiao-qin Department of Neurology Zhongnan Hospital of Wuhan University Wuhan Hubei 430071 China Teaching and Research Section of Neuropsychiatry Zhongnan Hospital of Wuhan University Wuhan Hubei 430071 China Department of Neurology Xinjiang Uygur Autonomous Region Hospital of Traditional Chinese Medicine Urumqi Xinjiang 830000 China

Background Dementia is a chronic progressive disease seriously affecting the patient＇s daily life and working skills and may cause the patient disability and dependence. Thus, caring for dementia patients inevitably falls on families in the mainland of China. Unfortunately, there are rarely enough reports available about mental health and social support in family caregivers for domestic dementia patients. This study aimed to investigate the changes in psychological status and social support in domestic dementia family caregivers and hope the government and relevant departments pay more attention to the family caregiver＇s psychological change, which may be better for dementia patients. Methods Fifty-eight immediate family caregivers （family group） for dementia patients, including 21 Alzheimer＇s disease （AD） and 37 vascular dementia inpatients, were recruited for interview. Fifty-eight age- and sex-matched normal volunteers （control group） were also interviewed in the same period. The psychiatric distress was assessed by the Symptom Checklist 90 （SCL-90）, family functioning was assessed by the family Assessment Device （FAD）, and the social support was assessed by the Multidimensional Scale of Perceived Social Support （MSPSS）. Group differences were analyzed using unpaired t test for comparison of SCL-90, FAD, and MSPSS mean scores. Pearson＇s correlation coefficient was used to find the association between the various dimensions of FAD and the social support from dementia family caregivers. Results Except phobic anxiety dimension, the other dimensions of SCL-90 mean scores were significantly higher in the family group than those in the control group （P 〈0.05）. In the family group, except affective involvement dimension, the other dimensions of FAD mean scores were within the scope of unhealthy family functioning. Significant differences in problem solving, communication, roles, affective responsiveness, behavioral control, general functioning, and the total MSPSS mean

关键词： dementia family caregivers psychiatric distress familyfunctioning social support

The Impact of Alzheimer’s Disease on the Life of family caregivers: A Phenomenological View

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Open Journal of Nursing 2016年第4期6卷 333-341页

作者： Berta Sheila Souza Ribeiro Luciana Krauss Rezende Selma Petra Chaves Sa Wiliam César Alves Machado Science of Health Care Aurora Afonso Costa Nursing School Fluminense Federal University Human Resources Management at the Anhanguera University Centre Niterói Brazil Science of Health Care Graduate Program of the Aurora Afonso Costa Nursing School Fluminense Federal University Developmental Disorders at the Mackenzie Presbyterian University Niterói Brazil Nursing Federal University of Rio de Janeiro Department of Nursing Administration Fundamentals and of the Fluminense Federal University and the Science of Health Care Graduate Program (MACCS) and Nursing Graduate School (MPEA) Health Care for the Elderly in the UFF Nursing School Niterói Brazil Graduate Program in Health and Hospital Space Technology PPGSTEH and Graduate Program Federal University of the State of Rio de Janeiro Rio de Janeiro Brazil

The objectives of this study are to describe the perception of caregivers about the process of caring for elders with Alzheimer’s disease, analyze the impact of the care process on the caregiver’s life from the biological and emotional aspects, and discuss the changes in the caregiver’s life in the light of Gestalt Therapy. This was a qualitative and descriptive study with a phenomenological analysis. The results showed that family caregivers are in a vulnerable situation because they are usually women who are also aging or are already elderly, who do not receive the necessary support to meet their needs. Because of the demands of providing care for Alzheimer’s patients, caregivers fail to consider their own issues and develop more mechanized ways of relating to their situation, using crystallization as a defense mechanism. Stress and isolation can adversely affect the physical and mental health of caregivers.

关键词： Elderly family caregivers Alzheimer’s Disease Care

Hospital Discharge Plan in family caregivers of Children with Coronary Artery Aneurysm in Kawasaki Disease: A Review

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Journal of Clinical and Nursing Research 2024年第8期8卷 83-91页

作者： Yunjing Zhang Yuting Zheng Affiliated Children Hospital of Kunming Medical University Kunming 650103Yunnan ProvinceChina

Objective:The study reviews status,main time nodes and hospital discharge services for family caregivers of children with Kawasaki disease complicated by coronary artery aneurysm to provide references for the development of hospital discharge preparation services for medical personnel and ***:CAL of Kawasaki disease is the main cause of acquired heart disease in children,but there is not enough research on the readiness for hospital ***:Systematic review of observational and interventional studies.

关键词： Hospital discharge plan family caregivers Kawasaki disease Systematic review

The status of caregiver burden and influencing factors among family caregivers in maintenance hemodialysis patients

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Nursing Communications 2022年第1期6卷 90-96页

作者： Fu-Hai Xia Guo-Qing Wang Xue-Fen Wang Health Science Center Yangtze UniversityJinzhou 434023China Nursing Department Renmin Hospital of Wuhan UniversityWuhan 430060China

Objective: To investigate the status of caregiver burden and influencing factors among family caregivers in maintenance hemodialysis (MHD) patients under the background of coronavirus disease 2019, and to provide references for nursing intervention. Methods: From May to August 2020, 237 convenient samples were recruited from the Hemodialysis Centers of The Renmin Hospital of Wuhan University and Zhongnan Hospital of Wuhan University. Questionnaires were conducted with the General Information Questionnaire, Zarit Burden Interview (ZBI), Sense of Coherence-13 (SOC-13) and Perceived Social Support Scale (PSSS). Multiple linear regression was used to analyze the influencing factors of caregiver burden. Results: The score of ZBI among the caregivers was (36.05 ± 14.09). The ZBI of family caregivers was negatively correlated with SOC-13 and PSSS (P family caregivers of MHD patients was above average under the background of COVID-19, which indicated that they felt more burden in the process of caring. Medical staff could give targeted support and guidance in combination with their influencing factors to reduce their caregiver burden further.

关键词： maintenance hemodialysis family caregivers caregiver burden sense of coherence social support

Perspectives and Challenges of family Members in Providing Mental Support to Cancer Patients:A Qualitative Study in Beijing,China

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Psycho-Oncologie 2024年第4期18卷 257-269页

作者： Wei Wang Lan Li Department of Social Sciences Universiti SelangorBatang Berjuntai45600Selangor Beijing Youth Research Association Beijing100044China Sinounited Investment Group Corporation Limited Postdoctoral Programme Beijing102611China

This study explores the perspectives and challenges faced by family members providing mental support to cancer patients in Beijing,*** primary objective is to understand the emotional and practical roles family members undertake and the difficulties they *** a qualitative research design,data were collected through semi-structured interviews with family caregivers of cancer *** analysis revealed several key themes:the dual burden of emotional support and caregiving responsibilities,the impact on daily life and personal well-being,the role and effectiveness of external support systems,perceptions of medical staff support,and the common challenges and conflicts faced in *** findings highlight the critical need for comprehensive support systems that address both the emotional and practical needs of family *** for enhancing family-centered support programs in oncology settings are discussed.

关键词： family caregivers mental health support cancer patients qualitative study Beijing caregiving challenges emotional support healthcare systems

Effect of family caregiver nursing education on patients with rheumatoid arthritis and its impact factors:A randomized controlled trial

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World Journal of Clinical Cases 2021年第28期9卷 8413-8424页

作者： Jing Li Ying Zhang Ya-Juan Kang Nan Ma Department of Immunology and Rheumatology The Third Hospital of Hebei Medical UniversityShijiazhuang 050051Hebei ProvinceChina

BACKGROUND Rheumatoid arthritis(RA)is a common autoimmune *** education for family caregivers is considered a workable and effective intervention,but the validity of this intervention in RA has not been *** To explore whether family caregiver nursing education(FCNE)works on patients with RA and the factors that influence *** In this randomized controlled study,a sample of 158 pairs was included in the study with 80 in the intervention group and 78 in the control *** data of patients and caregivers was *** FCNE intervention was admi-nistered to caregivers,and inflammation level indicators,disease activity indicators and mood disorder indicators of patients were followed up and *** Baseline characteristics of the intervention and the control groups had no significant *** were significantly reduced in the intervention group compared to the control *** intervention group showed significant differences in stratification of relationship,education duration and *** The effect of FCNE on RA is multifaceted,weakening inflammation level,alleviating disease activity and relieving mood *** between caregiver and patient,caregiver’s education level and patient’s age may act as impact factors of FCNE.

关键词： Nursing education family nursing Rheumatoid arthritis family caregivers Depression Anxiety

Intensive care environment: Perspective of relatives of critically ill patient sustained by health technology

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Journal of Integrative Nursing 2023年第2期5卷 102-107页

作者： Chinomso Ugochukwu NWOZICHI Olaolorunpo OLORUNFEMI Department of Medical Surgical Nursing Babcock UniversityIllishan-RemoOgun StateNigeria

The intensive care unit(ICU)is a complex setting by nature,and some have described it as bizarre due to its numerous sirens that sound when anything is dangerous,constant activity,equipment,bright lights,and high fatality *** demands placed on nurses to care for critically ill patients in this environment frequently prevent nurses and other health‑care professionals from acknowledging the feelings of patient’s relatives or family caregivers,resulting in a hostile environment from the patient’s relative’s *** a patient’s family enters the ICU,they feel that hospital administrators do little to nothing to alleviate their discomfort and *** research demonstrating the importance of providing a homely environment for patients’families,In Nigeria ICU is still far behind how a conventional ICU environment should be structured to accommodate patient’s relations in the *** goal of this study was to look at the patient’s relative’s perspective on providing care for a critically ill patient in an ICU,with a focus on the unit’s complexity and overall *** on the findings of this study,we recommend that hospital administrators ensure that the environment of the upcoming ICU is designed to meet the needs of patient’s relatives by addressing identified environmental concerns,like caring neglect,by providing a friendly and stress‑free environment.

关键词： family caregivers health technologies critically ill patients intensive care unit patient’s relative’s perspective

Survey of Bereavement Care Provided by Home-Visit Nurses for Bereaved Families in Japan

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Health 2021年第6期13卷 660-676页

作者： Ozawa Miwa Sei Jungetsu Uchino Seiko Department of Nursing School of Nursing University of Tsukuba Ibaraki Japan Department of Nursing Faculty of Nursing Gifu University of Medical Science Gifu Japan

Purpose: This study aims to investigate the implementation conditions of bereavement care for bereaved families and the relationship between demographics of home-visit nurses and rates of provision of bereavement care. Methods: A self-rating anonymous questionnaire survey was conducted with 2200 facilities randomly selected from among the members of the Home-visit Nursing Stations of the National Nursing Business Association. Calculating the rates of provision of each pre- and post-bereavement care item of the survey, we performed a multiple logistic regression analysis to investigate the relationship between the demographics of home-visit nurses and rates of provision of care. Statistical processing employed SPSS ver. 21.0 with the significance level set at 5%. Results: A total of 688 responses were collected (collection rate, 31.3%), and 649 were included in the analysis. “Approval of the care that the family has provided” and “Involvement in the care together with the family and listening to their thoughts” were frequently provided in both pre- and post-bereavement care;however, the rate of provision of “Provided continued support/life planning until the family fully recovers social life” was low. More care services were provided by home-visit nurses working in facilities with 24-hour services in pre-bereavement, and by those with longer home-visit nursing experience in post-bereavement. Conclusions: Home-visit nurses provide many post-bereavement care services. However, continued care that helps bereaved families fully recover their social life, including life planning, is less frequently provided. Bereavement care provision rates vary depending on the facility type, whether the facility offers 24-hour services, and the length of home-visit nursing experience.

关键词： Continued Nursing Bereavement Care Home-Visit Nurses family caregivers Bereaved Families