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end-of-life Inpatient Palliative care for Glioblastoma Multiforme:Lessons Learned from One Case

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Chinese Medical Sciences Journal 2024年第4期39卷 297-302页

作者： Zhi-Yuan Xiao Yan-Xia Sun Dong-Rui Xu Xiao-Hong Ning Yu Wang Yi Zhang Wen-Bin Ma Department of Neurosurgery Peking Union Medical College HospitalChinese Academy of Medical Sciences&Peking Union Medical CollegeBeijing 100730China Palliative care Center Peking Union Medical College HospitalChinese Academy of Medical Sciences&Peking Union Medical CollegeBeijing 100730China

Glioblastoma multiforme(GBM)is the most common malignant primary brain tumor with a poor prognosis and limited *** with GBM have a high demand for palliative *** our present case,a 21-year-old female GBM patient received inpatient palliative care services including symptom management,mental and psychological support for the patient,psychosocial and clinical decision support for her family members,and pre-and post-death bereavement management for the ***,we provided the family members with comprehensive psychological preparation for the patient's demise and assisted the patient's family throughout the mourning *** aim of this study is to provide a reference and insights for the clinical implementation of palliative care for patients with malignant brain tumors.

关键词： glioblastoma glioblastoma multiforme palliative care end-of-life care

Nurses’ Experiences of Using the Liverpool care Pathway Plan in Hospitalized Patients with Heart Failure in the end-of-life Stage: A Qualitative Content Analysis

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Open Journal of Nursing 2016年第8期6卷 591-599页

作者： Randi Hove Nina Fålun Bengt Fridlund Institute of Nursing Department of Health and Social Sciences Bergen University College Bergen Norway Department of Heart Disease F&oslashrde Hospital F&oslashrde Norway Department of Heart Disease Haukeland University Hospital Bergen Norway School of Health and Welfare J&oumlnk&oumlping University J&oumlnk&oumlping Sweden

Background: The introduction of care pathway plans for end-of-life cares such as the Liverpool care Pathway (LCP) reveals a unique possibility for inter professional collaboration. Knowledge of symptom relief and how to meet the patients’ needs at the last stage of the palliative phase are essential for the nurses’ approach and care actions, but the documentation of such implementations is still rare and sometimes criticized. Aim: To explore and describe nurses’ experiences of using the LCP plan with patients hospitalized with heart failure at the end-of-life stage. An explorative design was applied, using qualitative content analysis of 20 interviews with nurses practicing the LCP plan in two district hospitals in Norway. Results: The nurses found the LCP plan as quality assurance for treatment and care in patients with heart failure in the last hours and days of life. The use of the LCP plan implied: 1) individualized adjustment, 2) symptom relief and 3) a holistic approach. Conclusion: Nurses experienced that using the LCP plan as a comprehensive action plan contributed in the decision making process and improved inter professional communication. Using the LCP plan should be seen as a tool to practice individualized and holistic nursing to patients at the end-of-life and their families, as well as a purposeful relief of symptoms associated with heart failure.

关键词： end-of-life care Heart Failure Nursing Palliative care Qualitative Method

A conceptual analysis of the meaning of comfort at the end-of-life using the Walker and Avant(2014)Framework

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Frontiers of Nursing 2021年第2期8卷 91-97页

作者： Yong-Chao Hou Fiona Timmins Qian Zhou Ju-Zi Wang Emergency Department Shanxi Provincial People’s HospitalTaiyuanShanxi 030012China School of Nursing and Midwifery Trinity College DublinDublin 2Ireland

Objective:The aim of the authors is to clarify the concept of comfort at the end-of-life in order to support understandings of fundamental nursing care needed at this stage of ***:The Walker and Avant framework was applied to develop a deeper understanding of the concept of comfort at the end of ***:Five defining attributes of comfort in the end-of-life were identified and they are having a peaceful home-life environment,trust and consolation,proximity and social-cultural support,alleviation of suffering,and a process of integrated intervention by ***:At the end-of-life patients commonly experience physical,psychological,social-cultural,and environmental ***’families also encounter significant ***,their comfort needs are often secondary to that of the ***,a lack of clarity exists regarding the holistic meaning of comfort at the end-of-life,which can largely be confined to understandings of physical comfort for the patient,with a limited understanding of addressing family/caregivers’***,this concept analysis may provide some guidance in this regard and also provides support toward a more integrated understanding of the concept.

关键词： comfort end-of-life care concept analysis death dying

Learning from the Film “Mitorishi (Transition Doula)”—Application to Understanding the end-of-life in a Gerontological Nursing Practice Course in Japan

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Open Journal of Nursing 2023年第5期13卷 233-248页

作者： Testuko Takaoka Atsuko Hatsumi Miho Sugawara Yumi Takenouchi Sugako Fujinaga Department of Nursing Faculty of Human Sciences Hokkaido Bunkyo University Eniwa Japan

Purpose: This study aims to detail what nursing students learned from watching the film “Mitorishi”, which was used among the teaching materials in a gerontological nursing practice course in nursing education in Japan, and demonstrate the applicability of using the film as an element relevant to the teaching of end-of-life care in Japan. Methods: The participants were fourth-year nursing students at University A who had watched the film “Mitorishi” during the course, had submitted a report on what they learned, and provided informed consent to the study participation. The reports submitted by the participants were used as data and analyzed qualitatively using the content analysis approach. Results: The analysis identified the following five categories (number of codes): Characteristics of life during the final days (9), Importance of views on life and death (3), Importance of end-of-life care (3), Assistance in preparation for the final days of life (13), and Understanding the profession of transition doula (9). Discussion: The five categories show that the students have learned about the “role of nurses at the time of end-of-life care” while “visualizing end-of-life care” and learning “preparedness for end-of-life care”. These findings suggest that using the film “Mitorishi” in the teaching curriculum is effective for learning about end-of-life care for older people.

关键词： end-of-life care Nursing Students Basic Nursing Education Transition Doula

Palliative care with adequate pain relief challenges the need for euthanasia legislation

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History & Philosophy of Medicine 2024年第2期6卷 6-13页

作者： Renald Blundell Martina Cini Kimberley Blundell Department of Physiology and Biochemistry Faculty of Medicine and SurgeryUniversity of MaltaMsida MSD2080Malta Centre for Molecular Medicine and Biobanking University of MaltaMsida MSD2080Malta Faculty of Law University of MaltaMsida MSD2080Malta

Background:In today’s society the ongoing discussion about euthanasia triggers emotionally charged debates surrounding the delicate balance between valuing life and respecting an individual’s *** the persistence of this debate,there has been the emergence of the concept of the so-called alternative:palliative *** as a substitute for euthanasia,palliative care aims to alleviate suffering in terminally ill patients without engaging in the ethical dilemmas associated with ***:This paper explores the facets of palliative care highlighting its core objectives such as providing adequate pain relief as a compassionate alternative to ***:By examining palliative care as a comprehensive approach to end of life support,this study challenges the perceived necessity of euthanasia and advocates,for compassionate and dignified end of life ***:In conclusion,palliative care emerges as a viable and ethically sound alternative to euthanasia,emphasizing the importance of compassionate end-of-life care and pain management.

关键词： palliative care adequate pain relief euthanasia legislation end-of-life care patient-centered care policy development