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Emotions,Perceptions and Health Behaviors of adult congenital heart disease Patients during COVID-19 in New York City

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congenital heart disease 2022年第5期17卷 519-531页

作者： Jodi L.Feinberg Peter Sheng Stephanie Pena Adam J.Small Susanna Wendelboe Katlyn Nemani Vikram Agrawal Dan G.Halpern Leon H.Charney Division of Cardiology NYU Grossman School of MedicineNew YorkUSA Department of Medicine NYU Grossman School of MedicineNew YorkUSA Department of Psychiatry NYU Grossman School of MedicineNew YorkUSA Department of Cardiology Mount Sinai MorningsideNew YorkUSA

Background:adults with congenital heart disease(ACHD)have increased prevalence of mood and anxiety *** are limited data regarding the influence of the COVID-19 pandemic on the mental health and health behaviors of these ***:The purpose is to evaluate the perceptions,emotions,and health behaviors of ACHD patients during the COVID-19 ***:In this cross-sectional study of ACHD patients,we administered surveys evaluating self-reported emotions,perceptions and health *** regressions were performed to determine the adjusted odds of displaying each perception,emotion and health behavior based on predictor ***:Ninety-seven patients(mean age 38.3 years,46.4%female,85.6%moderate or complex lesion)completed the *** majority of patients reported feeling moderately or very sad(63.1%),and 48.4%of patients identified themselves as feeling moderately or very *** majority of patients perceived their risk of COVID-19 as moderate or *** were more likely to report feeling sad and anxious(95%CI 1.06–10.96,p-value 0.039,and 95%CI 1.44–15.30,p-value=0.012,respectively),and were associated with higher odds of having a perceived increased risk of COVID-19(95%CI 1.33–10.59,p-value 0.012).There was no association between ACHD anatomic or physiologic classification and perceptions,emotions and health ***:Females were more likely to report feeling sad,anxious and an increased risk of COVID-19 in comparison to *** findings indicate the need for mental health support and promotion of health behaviors during the pandemic amongst all ACHD patients,regardless of underlying condition.

关键词： adult congenital heart disease COVID-19 health behaviors anxiety depression

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Evaluation of Post-Operative Atrial Fibrillation after Cardiac Surgery for adult congenital heart disease

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congenital heart disease 2024年第5期19卷 457-472页

作者： Jonathan S.Taylor-Fishwick Nicholas Holzemer Brandon Middlemist Vivian Duarte Kaitlin E.Olson Johannes Cvon Alvensleben Megan SooHoo Amber Khanna Internal Medicine-Pediatrics Residency University of ColoradoAuroraCO 80045USA adult congenital heart disease Fellowship University of ColoradoAuroraCO 80045USA School of Medicine University of ColoradoAuroraCO 80045USA Department of Pediatrics University of ColoradoAuroraCO 80045USA Division of Pediatric Cardiology ElectrophysiologyUniversity of ColoradoAuroraCO 80045USA Division of Pediatric Cardiology University of ColoradoAuroraCO 80045USA Division of Cardiology University of ColoradoAuroraCO 80045USA

Background:Post-operative atrial fibrillation(POAF)frequently occurs after cardiac *** adult congenital heart disease(ACHD)patients have higher rates of arrhythmia than the general population,there is scant literature on POAF in ACHD ***:Identify key risk factors associated with post-operative atrial fibrillation and evaluate the short-and mid-term significance of developing ***:A retrospective cohort study was conducted of ACHD patients from 2013–2021 at the University of Colorado Hospital and Children’s Hospital of *** institutional Society of Thoracic Surgeons(STS)surgical registry was used to identify patients≥18-year-old with congenital heart disease who underwent cardiac surgery during the study ***:A total of 168 patients(48%female)were *** median age was 36 years(IQR 28–48).Onehundred and fifty patients(90%)had moderate ACHD anatomical complexity,and 10 patients(6%)had severe ACHD anatomical complexity based on initial ACHD *** occurred in 40(24%)*** age,history of supraventricular tachycardia,intra-operative arrhythmia,and post-operative hypokalemia independently predicted *** was associated with an increased length of stay(8 vs.5 days,p<0.001)and recurrence of atrial fibrillation(46%vs.21%,OR 3.35,p=0.002)but did not predict mortality,stroke,or bleeding ***:Atrial fibrillation is a common complication after cardiac surgery in the ACHD *** age,history of supraventricular tachycardia,intra-operative arrhythmia,and post-operative hypokalemia independently predicted *** investigation is needed to understand the long-term impacts of POAF.

关键词： Atrial fibrillation adult congenital heart disease cardiac surgery post-operative complications

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A 63-Year-Old Male with D-Transposition of the Great Arteries Who Had an Early Form of the Arterial Switch Operation

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congenital heart disease 2024年第1期19卷 65-68页

作者： Michael A.Rebolledo Jane S.Yao Jason N.Johnson Umar S.Boston Benjamin R.Waller III Division of Pediatric Cardiology Department of PediatricsThe University of Tennessee Health Science CenterThe Heart InstituteLe Bonheur Children’s HospitalMemphisUSA College of Medicine The University of Tennessee Health ScienceMemphisUSA Division of Pediatric Cardiothoracic Surgery Department of SurgeryThe University of Tennessee Health Science CenterHeart InstituteLe Bonheur Children’s HospitalMemphisUSA

We describe a 63-year-old male who appears to have undergone an early form of the arterial switch operation for D-transposition of the great arteries performed in the *** review the clinical and imaging data that support our *** had a diagnostic cardiac catheterization which demonstrated severe pulmonary hypertension responsive to epoprostenol and *** case may represent one example of the experimental surgical work done prior to *** Jatene’s description of theﬁrst successful arterial switch performed in 1975.

关键词： adult congenital heart disease arterial switch operation great vessel anomaly imaging(all modalities)

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Impact of Social Determinants of Health on Self-Perceived Resilience: An Exploratory Study of Two Cohorts of adults with congenital heart disease

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congenital heart disease 2024年第1期19卷 33-48页

作者： Albert Osom Krysta S.Barton Katie Sexton Lyndia Brumback Joyce P.Yi-Frazier Abby R.Rosenberg Ruth Engelberg Jill M.Steiner Department of Biostatistics University of WashingtonSeattleWA98195USA Biostatistics Epidemiology and Analytics for Research(BEAR)Core Seattle Children’s Research InstituteSeattleWA98101USA College of Medicine University of WashingtonSeattleWA98195USA Center for Clinical and Translational Research Seattle Children’s Research InstituteSeattleWA98101USA Department of Psychosocial Oncology and Palliative Care Dana-Farber Cancer InstituteDepartment of MedicineBoston Children’s HospitalBostonMA02215USA Department of Pediatrics Harvard Medical SchoolBostonMA02215USA Division of Pulmonary Critical Care and Sleep MedicineDepartment of Medicine&Cambia Palliative Care Center of ExcellenceUniversity of WashingtonHarborview Medical CenterSeattleWA98104USA Division of Cardiology Department of Medicine&Cambia Palliative Care Center of ExcellenceUniversity of WashingtonSeattleWA98195USA

Social determinants of health(SDOH)affect quality of *** investigated SDOH impacts on self-perceived resilience among people with adult congenital heart disease(ACHD).Secondary analysis of data from two com-plementary studies:a survey study conducted May 2021–June 2022 and a qualitative study conducted June 2020–August *** was assessed through CD-RISC10 score(range 0–40,higher scores reﬂect greater self-perceived resilience)and interview *** and SDOH(education,employment,living situa-tion,monetary stability,ﬁnancial dependency,area deprivation index)data were collected by healthcare record review and *** used linear regression with robust standard errors to analyze survey data and performed a thematic analysis of interview *** participants(N=127)mean age was 42±14 years;51%were female,87%*** was moderate(75%)or complex(25%);41%functional class C or ***(mean 30±7)varied by monetary stability:compared to people with difﬁculty paying bills,resilience was 15.0 points higher(95%CI:6.9–23.1,p<0.001)for people reporting having enough money and 14.2 points higher(95%CI:5.9–22.4,p=0.001)for those reporting just enough *** participants’(N=25)mean age was 32 years(range 22–44);52%were female,72%*** was moderate(56%)or complex(44%);76%functional class C or *** discussed factors affecting resilience aligned with each of the major SDOH,prominently,economic stability and healthcare access and *** stability may be important for supporting self-perceived resi-lience in *** knowledge can inform the development of resilience interventions for this population.

关键词： Social determinants of health adult congenital heart disease resilience ﬁnancial stability

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Loss to Specialized Cardiology Follow-Up in adults Living with congenital heart disease

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congenital heart disease 2024年第1期19卷 49-63页

作者： Cheryl Dickson Danielle Osborn David Baker Judith Fethney David S.Celermajer Rachael Cordina Department of Cardiology Royal Prince Alfred HospitalSydneyAustralia Department of Cardiothoracic Surgery Westmead HospitalSydneyAustralia Susan Wakil School of Nursing and Midwifery The University of SydneySydneyAustralia Sydney Medical School The University of SydneySydneyAustralia

Background:Much has been written about the loss to follow-up in the transition between pediatric and adult congenital heart disease(CHD)care *** less is understood about the loss to follow-up(LTF)after a successful *** is critical too,as patients lost to specialised care are more likely to experience mor-bidity and premature ***:To understand the prevalence and reasons for loss to follow-up(LTF)at a large Australian adult congenital heart disease(ACHD)***:Patients with moderate or highly complex CHD and gaps in care of>3 years(deﬁned as LTF)were identiﬁed from a comprehensive ACHD *** telephone interviews examined current care and barriers to clinic ***:Overall,407(22%)of ACHD patients(n=1842)were *** mean age at LTF was 31(SD 11.5)years and 54%were male;311(76%)were *** to adults seen regularly,lost patients were younger,with a greater socio-economic disadvantage,and had less complex CHD(p<0.05 for all).We interviewed 59 patients(14%).The top 3 responses for care absences were“feeling well”(61%),losing track of time(36%),and not needing fol-low-up care(25%).Conclusions:A large proportion of the ACHD population becomes lost to specialised cardiac care,even after a successful *** Australian study reports younger age,moderate complexity defects,and socio-economic disadvantage as predictive of loss to *** study highlights the need for novel approaches to patient-centered service delivery even beyond the age of transition and resources to maintain patient engagement within the ACHD service.

关键词： Loss to follow-up follow-up adult congenital heart disease lapse in care gaps in care care gaps care continuity ACHD predictors

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adults with congenital heart disease during the COVID-19 Era:One-Year Tertiary Center Experience

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congenital heart disease 2022年第4期17卷 399-419页

作者： Fatma A.Taha Osama Amoudi Fareed Alnozha Reda Abuelatta adult Cardiology Department Madinah Cardiac CenterMadinahSaudi Arabia Cardiology Department Faculty of MedicineTanta UniversityTantaEgypt

Background:adult patients with congenital heart disease(ACHD)might be at high risk of Coronavirus disease-2019(COVID-19).This study aimed to report on a one-year tertiary center experience regards COVID-19 infection in ACHD ***:This is a one-year(March-2020 to March-2021)tertiary-center retrospective study that enrolled all ACHD patients;COVID-19 positive patients’medical records,and management were ***:We recorded 542 patients,205(37.8%)COVID-19-positive,and 337(62.2%)COVID-19-negative *** single ventricle and Eisenmenger syndrome patients were more vulnerable to COVID-19 infection(Pheart failure in 39(19.0%)patients,cyanosis in 12(5.9%)patients,stroke/TIA in 5(2.4%)patients,hypertension and infective endocarditis in 2(1.0%)patients for each,pulmonary hypertension and pulmonary embolism in 1(0.5%)patient for each.11(5.4%)patients were managed with home isolation,147(71.7%)patients required antibiotics,32(15.6%)patients required intensive care unit(ICU),8(3.9%)patients required inotropes,7(3.4%)patients required mechanical ventilation,and 2(1.0%)patients required extracorporeal membrane oxygenation(ECMO).Thromboprophylaxis was given to all 46(22.4%)hospitalized *** College of Cardiology/American heart Association classification revealed that complex lesions,and FC-C/D categories were more likely to develop severe/critical symptoms,that required mechanical ventilation and ECMO(P<0.05*).Mortality was reported in 3(0.6%)patients with no difference between groups(P=0.872).193(35.6%)patients were ***:COVID-19 infection in ACHD patients require individualized risk stratification and *** syndrome,single ventricle palliation,complex lesions,and FC-C/D patients were more vulnerable to severe/critical symptoms that required ICU admission,mechanical ventilation,and *** vaccine was mostly tolerable.

关键词： adult congenital heart disease COVID-19 era COVID-19 pandemic COVID-19 positive congenital heart disease patients COVID-19 infected adults with congenital heart disease

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A Systematic Approach to Pulmonary Valve Replacement in the Current Era

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congenital heart disease 2021年第3期16卷 285-297页

作者： R.Allen Ligon Larry A.Latson Mark M.Ruzmetov Kak-Chen Chan Todd Roth Immanuel I.Turner Frank G.Scholl Steve Bibevski The Pediatric heart Institute Joe DiMaggio Children’s HospitalMemorial Regional Hospital-Memorial Healthcare SystemHollywoodFloridaUSA Division of congenital Cardiothoracic Surgery The Pediatric Heart InstituteJoe DiMaggio Children’s HospitalFloridaUSA

Background:Pulmonary valve replacement(PVR)can be accomplished via surgical,transcatheter,or hybrid *** are inherent advantages to transcatheter PVR and hybrid PVR without cardiopulmonary *** review the methods and results of a standardized institutional approach to ***:Retrospective review of all PVR cases between February 2017 and February *** PVR entailed off-pump RVOT plication with percutaneous transcatheter ***:Primary transcatheter PVR was attempted in 37,hybrid PVR was performed in 11,and on-pump surgical PVR was performed in *** age at PVR was 27 years(6–65).Primary transcatheter PVR was successful in 35/37(2 converted to surgical).Standard surgical PVR was utilized for positive coronary compression testing(n=4),stent/valve system migration(n=2),or patient preference(n=3).In the hybrid group mean RVOT diameter was 34 mm(32–38).Median length of stay was 1 day for transcatheter PVR,5 for surgical,and 3 for hybrid(p=0.02).Median follow-up was 1.5 ***-interventions were one balloon valve dilation in a transcatheter PVR,and one valve dilation with subsequent transcatheter valve-in-valve PVR in the surgical *** hybrid patient expired 11 months post ***:A systematic approach to PVR utilizing all approaches in pre-defined order of preference leads to consistent outcomes in a wide variety of anatomic *** PVR may be accomplished in the majority of *** necessary,hybrid off-pump RVOT plication with transcatheter PVR avoids the need for cardiopulmonary bypass.

关键词： Transcatheter pulmonary valve replacement adult congenital heart disease congenital heart disease

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A Case of A Middle-Aged Woman with Cor Triatriatum Dexter and Sick Sinus Syndrome: Comprehensive Cardiovascular Evaluation

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Journal of Clinical and Nursing Research 2024年第10期8卷 1-6页

作者： Jun Wang Yongqin Wang Changqing Zhong Department of Hunan Provincial People’s Hospital Hunan Normal University First Affiliated Hospital Changsha 410000Hunan ProvinceChina

This case study discusses a 51-year-old woman with a complex cardiovascular condition,cor triatriatum dexter,complicated by sick sinus *** patient presented with a history of bradycardia,dizziness,and amaurosis,and was admitted to the emergency department due to numbness in her right *** examinations,including computed tomography(CT)and cardiac color-ultrasound screening,revealed cor triatriatum dexter along with an enlarged left atrium and *** findings included the absence of the inferior vena cava and polysplenic *** on these results,double-chamber pacemaker surgery was recommended,supported by cardiac and thoracic-abdominal CT angiography and three-dimensional vascular *** case underscores the importance of comprehensive examinations in identifying associated cardiovascular abnormalities.

关键词： Bradycardia Double-chamber pacemaker surgery Cardiovascular abnormalities Polysplenic syndrome adult congenital heart disease

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Asymptomatic Mitral Regurgitation Caused by an Isolated Mitral Leaflet Cleft in a Young adult: A Case Report

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World Journal of Cardiovascular diseases 2022年第2期12卷 118-122页

作者： Mohamed Leye Serigne Mor Beye Momar Dioum Sarah Mouna Coly Désiré Alain Affangla Djibril Marie Ba Fatou Aw Khadidiatou Gueye Stéphanie Akani Mouhamadou Bamba Ndiaye Training and Research in Health Sciences Unit University of Thies Thies Senegal Training and Research in Health Sciences Unit University of Saint-Louis Saint Louis Senegal Faculty of Medicine University of Dakar Dakar Senegal

We report the case of an 18-year-old young man without previous medical history, who was referred for evaluation of an asymptomatic cardiac murmur. Physical examination found holosystolic 4-5/6 apical murmur with normal ECG. Bidimensionnal (2D) echocardiography revealed severe mitral regurgitation with thin mitral leaflets. Three dimensional (3D) Echocardiography done for better assessment of mitral valve regurgitation mechanism revealed an isolated mitral leaflet cleft, without signs of endocarditis or traumatic lesion. Regarding the absence of symptoms and excellent maximal exercise tolerance at stress echocardiography, a repair surgery wasn’t offered. Isolated mitral leaflet cleft is a rare congenital anomaly, in adults, the cleft may be an incidental finding that remains asymptomatic for years when the leak is well tolerated. 2D combined with 3D echocardiography is key for diagnosis and surgery guidance.

关键词： Mitral Regurgitation Isolated Mitral Cleft adult congenital heart disease Senegal

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