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High-quality health information Provision for Stroke Patients

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Chinese Medical Journal 2016年第17期129卷 2115-2122页

作者： Hong-Sheng Du Jing-Jian Ma MU Li Department of Neurosurgery Tianjin First Central Hospital Tianjin 300192 China

Objective： High-quality information provision can allow stroke patients to effectively participate in healthcare decision-making, better manage the stroke, and make a good recovery. In this study, we reviewed information needs of stroke patients, methods for providing infbnllation to patients, and considerations needed by the information providers. Data Sources： The literature concerning or including information provision for patients with stroke in English was collected from PubMed published from 1990 to 2015. Study Selection： We included all the relevant articles on information provision for stroke patients in English, with no limitation of study design. Results： Stroke is a major public health concern worldwide, ttigh-quality and effective health information provision plays an essential role in helping patients to actively take part in decision-making and healthcare, and empowering them to effectively self-managc their long-standing chronic conditions. Different methods for providing information to patients have their relative merits and suitability, and as a result, the effective strategies taken by health professionals may include providing high-quality information, meeting patients＇ individual needs, using suitable methods in providing information, and maintaining active involvement of patients. Conclusions： It is suggested that to enable stroke patients to access high-quality health information, greater efforts need to be made to ensure patients to receive accurate and current evidence-based information which meets their individual needs. health professionals should use suitable information delivery methods, and actively involve stroke patients in inforrnation provision.

关键词： health information information Provision Stroke Patient

Enriching online access to health information for the public: Efforts from a medical library in China

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Chinese Journal of Library and information Science 2013年第2期6卷 1-13页

作者： Tao DAI Institute of Medical information and Library Chinese Academy of Medical Sciences

Purpose: Disseminating medical and health information is a mission of a public medical library. This paper describes a practice of a medical library in providing online access to health information for the general public.Design/methodology/approach: A four-step workflow is developed to integrate and disseminate heterogeneous health information from medical associations. First, a raw data repository is developed to manage the original submissions from information providers.Second, each document in the raw data repository is represented in a standardized XML schema. Third, the medical terms are identified and manually annotated, enriching the semantics of health information. Lastly, all the semantically enriched XML documents are converted to HTMLs for online dissemination.Findings: A health information website, Chealth, was developed for Chinese speakers. It provides free online access for all without any login or IP constrains. Chealth is available at www.***.org.cn.Research limitations: The current workflow is time-consuming and labor-intensive due to the lack of information submission/exchange standard and commonly agreed-on consumer health terminology in Chinese.Originality/value: In this work, the target audience of the medical library has been extended from traditional academic/professional to the general public. Methodologies in library sciences have been combined with those in consumer health informatics in Chealth development.

关键词： Library science health information health literacy Online access Consumer health informatics

Survey and Research on health information Assistance Needs of Junior Middle School Students in Different Regions of Guangdong Province

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Journal of Advances in Medicine Science 2020年第2期3卷 5-11页

作者： Donglan Liu Jinmei Deng Weigao Huang Yongxun Cao Yinghua Long TheFirst Affiliated Hospital Sun Yat-sen UniversityGuangzhouGuangdong510080China Yanggan Middle School in Suixi ZhanjiangGuangdong524386China Dongqu Middle School GuangzhouGuangdongProvince510760China

Objective:To study the health information assistance needs of junior high school students in 8 different regions of Guangdong Province in a cluster,to understand the current situation of junior high school students'health information assistance needs,and to collect feasibility data for hospitals and schools to jointly promote the healthy development of students.Methods:In June 2019,a group of junior high school students from 8 different regions in Guangdong Province[678 students(in 2 towns),352 students(in 2 counties and prefecture-level cities),and 1098 students(in 4 provincial-level cities)]were selected in a group.A questionnaire survey was conducted by 2128 people,the results of the questionnaire survey were collected,and statistical analysis was performed.Results:Of the 2128 junior high school students in 8 different regions,only 52.07% had confidence in their health,and there were no regional differences.health information for students seeking professional medical assistance includes:1578 person-times(74.15%)of nutritional diets,1084 person-times(50.94%)to eliminate tiredness,1190 person-times(55.92%)to improve sleep quality,1002 person-times(47.09%)to reduce anxiety,making him happier and stronger 1164 person-times(54.70%).Students in different regions asked for help on how to make their hearts happier and stronger.The results suggest that provincial and county-level students have greater needs than urban students.Conclusion:The results of this research show that junior high school students in different regions of Guangdong Province have insufficient awareness of health,and there is a large demand for various health help information,and the focus is on prevention.It is of practical significance to strengthen and meet the health information needs of junior high school students.

关键词： Junior high school students health information Assistance Needs

Chinese Internet Searches Provide Inaccurate and Misleading information to Epilepsy Patients

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Chinese Medical Journal 2015年第24期128卷 3324-3328页

作者： Jian-Ming Liu Ru-Xiang Xu Yong-Sheng Hu Lian-Kun Ren Hui Qiao Hu Ding Zhi-Liang Liu Affiliated Bayi Brain Hospital Bayi Clinical College Southern Medical University Beijing 100700 China Department of Function Neurosurgery Beijing Xuanwu Hospital Beijing 100053 China Department of Neurology China-Japan Friendship Hospital Beijing 100029 China Department of Neuroelectrophysiology Beijing Tiantan Hospital Beijing 100050 China

Background： Most patients with epilepsy want to learn as much as possible about the disease, and many have turned to the internet for information. Patients are likely to use information obtained from the internet to control their epilepsy, but little is known about the accuracy of this information. In this survey, we have assessed the feasibility and usability ofinternet-based interventions for the treatment of epilepsy. Methods： Data were collected from an internet search. Different search terms were used to obtain general information on epilepsy together with information about medication, types of epilepsy, treatment, women＇s health, and other information. The accuracy of the information was evaluated by a group of experts. Results： A total of 1320 web pages were assessed. The majority were websites related to health. A large number （80.2%） of web pages contained content related to the search term. A significant number of web pages 450/1058 （42.5%） claimed to provide information from a credible source： however, only 206/1058 （19.5%） of the information was accurate and complete; 326/1058 （30.8%） was accurate but incomplete; 328/1058 （31.0%） was correct but nonstandard, and 198/1058 （18.8%） was inaccurate. The authenticity of the information was not significantly different between the two search engines （x^2 = 0.009, P - 0.924）. No significant difference was observed in the information obtained from a specialist or nonspecialist source （x^2 = 7.538, P- 0.057）. There was also no correlation between the quality of the information and the priority （x^2 = 6.880, P = 0,076）. Conclusions： Searching for information about epilepsy on the internet is convenient, but the information provided is not reliable. Too much information is inaccurate or for advertisement purposes, and it is difficult for patients to find the useful information. Turning to the internet for medical knowledge may be harmful. Physicians should be aware that their patients may search for information on the internet and guide them to safe, reputable web

关键词： Epilepsy health information Internet Self-management

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健康信息行为研究：溯源、范畴与展望

图书馆学情报学 2022年第8期

作者：朱庆华杨梦晴赵宇翔宋士杰

信息行为是图书情报学科的研究热点之一，随着人们对健康信息的日益关注，健康信息行为研究也已经发展成为具有成熟话语体系和价值认同的交叉研究领域。本文通过对国内外健康信息行为研究文献的梳理，追本溯源，理清“医学信息学—健康... 详细信息

信息行为是图书情报学科的研究热点之一，随着人们对健康信息的日益关注，健康信息行为研究也已经发展成为具有成熟话语体系和价值认同的交叉研究领域。本文通过对国内外健康信息行为研究文献的梳理，追本溯源，理清“医学信息学—健康信息学—消费者健康信息学—健康信息行为研究”的发展脉络；通过对该领域研究主题的归纳，界定了健康信息行为研究的范畴，指出健康信息行为研究重点聚焦于健康信息发现、健康信息采纳、健康信息评价和健康信息共享四个主题；通过对健康信息行为研究范式的总结，论述了该领域研究的共同价值与实践规范；结合研究实践，提出未来健康信息行为研究的发展趋势，为该领域进一步开展研究提供理论参考。

关键词：健康信息学健康信息信息行为 health informatics health information information behavior

Implementing TB Surveillance in Nigeria: Best Practices, Challenges and Lessons Learnt

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Journal of Tuberculosis Research 2020年第4期8卷 199-208页

作者： Oluremilekun Comfort Kusimo Chukwuebuka Immanuel Ugwu Ufuoma Aduh Chika Augustus Okoro World health Organization Lagos Nigeria

Introduction: TB Surveillance is a critical component of the global TB response. Comprehensive, accurate and timely information on TB is crucial for an effective TB control program hence the need for a robust tuberculosis surveillance system in all countries that contribute to the global burden of TB including Nigeria. Against this backdrop, an intervention was set in motion to triangulate the information from the health data reporting systems towards improving the overall surveillance system for TB in the country. Objectives: This article highlights the best practices, lessons learnt and challenges associated with the implementation of TB surveillance in Nigeria. In resource-limited settings such as Nigeria where health systems including health information management are sub-optimal, there is a heavy reliance on national and sub-national TB surveillance systems. TB data is mainly reported through the National Tuberculosis Control, however the integrated disease surveillance and response (IDSR) system also provides a platform for TB data collation through the LGA and State disease surveillance and notification officers. Conclusion: Implementing TB surveillance in Nigeria brought to fore the need for a wider engagement of all health facilities in TB control. As a dividend of the TB surveillance intervention, quality of care was improved in the private health sector through effective linkages to the commodity management system of the NTP and the national treatment guidelines. S

关键词： Tuberculosis Surveillance IDSR health information TB Data

健康信息规避行为影响因素研究：基于元分析的探索

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图书馆学情报学 2022年第2期

作者：艾文华胡广伟赵宇翔赵月华

[目的/意义]健康信息规避行为已然对人们生活产生了潜在的影响。对该领域实证类研究进行系统梳理，能够为后续相关研究提供针对性的研究策略和建议。[方法/过程]通过收集近十五年来国内外健康信息规避行为主题的实证类文献，筛选出包含4... 详细信息

[目的/意义]健康信息规避行为已然对人们生活产生了潜在的影响。对该领域实证类研究进行系统梳理，能够为后续相关研究提供针对性的研究策略和建议。[方法/过程]通过收集近十五年来国内外健康信息规避行为主题的实证类文献，筛选出包含42161个样本的33篇有效文献。运用元分析方法梳理和识别影响健康信息规避行为的关键因素，并分别从个体、认知、情感和情境四个层面分析它们与健康信息规避行为间的关系强度和作用方向。[结果/结论]有关健康信息规避行为的影响因素测量方式存在一定差异，尚未形成广泛适用的量表；个体、认知和情感层面已经引起了较多学者的关注，但情境层面还未能得到足够的重视，四个层面因素对健康信息规避行为具有不同程度的影响。

关键词：健康信息规避行为影响因素实证研究元分析 health information avoidance behavior influencing factors empirical research meta analysis

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用户在线健康信息搜寻任务研究

图书馆学情报学 2018年第2期 74-83页

作者：张鑫王丹

文章选取38位有代表性的普通公众，针对其在线健康信息搜寻任务进行了深度访谈，并结合任务分面分类法对访谈数据进行质性分析。文章认为，用户的在线健康信息搜寻任务可依据通用切面和属性特征两个维度进行分类，前者包括任务的来源、... 详细信息

文章选取38位有代表性的普通公众，针对其在线健康信息搜寻任务进行了深度访谈，并结合任务分面分类法对访谈数据进行质性分析。文章认为，用户的在线健康信息搜寻任务可依据通用切面和属性特征两个维度进行分类，前者包括任务的来源、目标、主题、状态、周期、频次、阶段、行为和成果，后者包括任务的紧急性、重要性、复杂性、困难性、经验性和预期性；不同的任务类型可进一步进行情境化分类。最后，构建了一个在线健康信息搜寻任务的分面分类理论模型。

关键词：搜寻任务在线搜寻健康信息医疗信息　　Search task Online search health information Medical information

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在线问诊环境下健康信息运动研究

图书馆学情报学 2017年第12期

作者：姚占雷李丹许鑫

文章运用文献调研、对比分析等方法，综合归纳并厘清健康信息与在线问诊的关系，紧接着在此基础上详细阐释了健康信息运动的一般规律(“搜寻—征询—解惑—实施—分享”五要素循环运动)，然后据此系统归纳出各自对应的关注点、研究现状... 详细信息

文章运用文献调研、对比分析等方法，综合归纳并厘清健康信息与在线问诊的关系，紧接着在此基础上详细阐释了健康信息运动的一般规律(“搜寻—征询—解惑—实施—分享”五要素循环运动)，然后据此系统归纳出各自对应的关注点、研究现状、研究方法等，旨在从宏观层面全方位厘清现阶段学术界和实践界取得的各类成果，以期为智慧医疗的相关实践探索提供有益指导或参考。

关键词：在线问诊健康信息信息行为综述 Online Question & Answer for health information health information information behavior Review