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family support,discrimination,and quality of life among ART-treated HIV-infected patients:a two-year study in China

Infectious Diseases of Poverty 2017年第1期6卷 1352-1361页

作者： Jun-Fang Xu Zhong-Qiang Ming Yu-Qian Zhang Pei-Cheng Wang Jun Jing Feng Cheng Research Center for Public Health School of MedicineTsinghua UniversityBeijingChina Fukangda Health International Science&Technology BeijingChina The Paul H.Nitze School of Advanced International Studies The Johns Hopkins UniversityBaltimoreUSA Department of Sociology Tsinghua UniversityBeijingChina Center for Global Health and Infectious Diseases of Tsinghua University BeijingChina

Background:By September 2016,approximately 653,865 people in China were living with HIV/AIDS(PLWHA)and 492,725 people were receiving antiretroviral therapy(ART).PLWHA frequently experience discrimination in all domains of their personal and social lives.The World Health Organization includes discrimination in its list of social determinants of health factors that have been linked to poor physical and psychological health.This paper identifies the family support enjoyed and discrimination faced by people infected with HIV and examines the effect they have on patients’quality of life(QOL)as they undergo ART in China.Methods:We conducted this observational cohort study of ART-treated patients with HIV in Guangxi Province using a questionnaire survey at baseline,6,12,and 24 months,starting in 2010.Descriptive analysis was used to describe the demographic characteristics(e.g.,age,sex,educational level,marital status,and employment status)of participants.Generalized estimating equations(GEE)were employed to examine the relationships between family support,discrimination,and QOL.Results:In the study,90.4%(n=281)of patients received family support at baseline,here defined as the initiation of ART,91.8%(n=244)received family support 6 months into ART,95.5%(n=220)at 12 months,and 94.3%(n=230)at 24 months.The proportion of patients who did not feel discriminated against by their families was 87.2%(n=274)at baseline,90.4%(n=229)6 months into ART,90.0%(n=210)at 12 months,and 94.5%(n=219)at 24 months.Patients’overall QOL scores were positively associated with having received family support(OR=2.74,P=0.040,95%CI:1.68-4.47),not feeling discriminated against by their families(OR=1.3,P=0.041,95%CI:1.07-1.59)or discrimination from patients themselves,including never experiencing fear of abandonment by family(OR=2.05,P=0.025,95%CI:1.49-2.82).Conclusions:family support along with no or minimal discrimination was found to contribute to QOL among people infected with HIV.Their overall QOL tended to improve significantly as ART continue

关键词： Quality of life family support Discrimination People infected with HIV China

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family support Situation and Educational Strategies for Primary School Children with Intellectual Disabilities Learning in Regular Class

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Journal of Contemporary Educational Research 2022年第9期6卷 93-98页

作者： Zuqin Lu Department of Special Education School of Educational SciencesLingnan Normal UniversityZhanjiang 524048Guangdong ProvinceChina Guangdong Provincial Key Laboratory of Development and Education for Special Needs Children Lingnan Normal UniversityZhanjiang 524048Guangdong ProvinceChina

This paper aims to verify the family support situation for primary school children with intellectual disabilities learning in regular class and to explore various educational strategies to promote their development.A self-made questionnaire was used in this survey,and the parents of 380 intellectual disabled students were the subjects of this survey.It turns out that the overall family support for intellectual disabled children learning in regular class in China is good,but it is affected by the degree of obstacles.Factors such as grade,gender,and parental education had no significant effect on family support.It is the shared responsibility of the government,schools,and parents to promote the level of family support.Governments at all levels must implement family support projects,schools must carry out family education guidance to impart scientific parenting knowledge,and parents must take note of their own responsibilities,so as to promote the physical and mental development of children with intellectual disabilities.

关键词： Learning in regular class Children with intellectual disabilities family support

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Adherence to iron supplementation amongst pregnant mothers in Surabaya, Indonesia: Perceived benefits, barriers and family support

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International Journal of Nursing Sciences 2018年第3期5卷 243-248页

作者： Mira Triharini Nursalam Agus Sulistyono Merryana Adriani Ni Ketut Alit Armini Aria Aulia Nastiti Nursing Faculty Universitas AirlanggaSurabayaIndonesia Doctoral Student's Health Science of Public Health Faculty Universitas AirlanggaSurabayaIndonesia Dr.Soetomo General Hospital Surabaya Indonesia Public Health Faculty Universitas AirlanggaSurabayaIndonesia

Background:Anaemia during pregnancy is a major nutritional problem that can cause preterm delivery and low birth weight.Adherence to iron supplementation can prevent anaemia during pregnancy.However,adherence to iron supplementation remains a problem in many countries.Objective:This study aimed to identify the correlations of the perceived benefits and perceived barriers of and family support for iron supplementation with adherence to this practice amongst pregnant woman in Surabaya,Indonesia.Methods:A cross-sectional study was carried out on 102 pregnant women who attended check-ups at the Puskesmas and received iron supplementation.Data were collected using questionnaires.Results:Perceived benefits(r=0.334,P=0.001),perceived barriers(r=-0.294,P=0.003)and family support(r=0.263,P=0.008)were noted to be correlated with adherence to iron supplementation amongst pregnant woman in Surabaya,Indonesia.Conclusion:Perceived benefits,perceived barriers and family support are related to adherence to iron supplementation;thus,developing good perceptions and family support should be properly promoted.

关键词： Adherence Anaemia family support Iron Pregnancy

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Frontiers of Nursing 2024年第1期11卷 111-117页

作者： Dian Hudiyawati Kartinah Afidatul Mujannidah Department of Medical Surgical Nursing School of NursingUniversitas Muhammadiyah SurakartaJawa Tengah 57169Indonesia Department of Geriatic Nursing School of NursingUniversitas Muhammadiyah SurakartaJawa Tengah 57169Indonesia Department of Nursing School of NursingUniversitas Muhammadiyah SurakartaJawa Tengah 57169Indonesia

Objective:To determine factors that affect the health-related quality of life(HRQOL)of congestive heart failure(CHF)patients with preserved and reduced ejection fraction.Methods:A cross-sectional study design was used for this study.The stratified random sampling was applied for each subgroup.HRQOL was measured with the Minnesota Living with Hear t Failure Questionnaire.The data were analyzed using chi-square,Spearman's correlation analysis,and independent t-test.Results:A number of 67 respondents participated in the recent study.The total mean scores of HRQOL were significantly different(P=0.001)between heart failure(HF)patients with reduced and preserved ejection fractions,41.07±7.54 and 54.97±4.36,respectively.It related with the physical(mean±standard deviation[SD]=10.4±2.14;t=-10.08,95%CI=-12.46 to-8.34;P-value=0.001)and psychological(mean±SD=3.5±0.5;t=-6.68,95%CI=-4.55 to-2.45;P-value=0.001)domain.Strong correlation was found between age(r=-0.898,Pfamily support(r=0.927,Pfamily suppor t is a fur ther determinant factor that has a positive correlation to the Qo L.

关键词： ejection fraction family support heart failure quality of life social support

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family structure and support for the oldest old:A cross-sectional study in Dujiangyan,China

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family Medicine and Community Health 2015年第4期3卷 5-14页

作者： Xiaohui Ren Hongdao Meng Chaojie Liu Jinhui Wu Birong Dong Ningxiu Li Department of Health and Social Behavior West China School of Public HealthSichuan UniversitySichuanChina School of Aging Studies University of South FloridaFLUSA School of Public Health La Trobe UniversityBundooraVICAustralia School of Health Management Hubei University of Chinese MedicineHubeiChina Department of Geriatrics West China HospitalSichuan UniversitySichuanChina

Objective:In China,adult children have traditionally provided support for their aged parents.This model of care is increasingly challenged by the decline of the extended family.Recently,China’s decades-long one-child policy has eased.We examine the association of family size and composition with family support for nonagenarians and centenarians.Methods:Data were obtained through a questionnaire survey of 619 nonagenarians and cen-tenarians in Dujiangyan and were analyzed by chi-square tests,Student t tests,and multivariate logistic regression models.Results:This study revealed that an increased number of offspring might provide financial support for older people,but this does not necessarily translate into physical and emotional care.Conclusion:It is clear that although alternative sources of support for older people are in-creasingly needed,in China the family will continue to play an important role in supporting older people.

关键词： Oldest old family support family structure China

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Analysis of the Effect of family-Centered Empowerment Model(FCEM)Health Education Through WeChat on Medication Compliance and Blood Pressure of Elderly Hypertensive Patients in Rural Areas

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Journal of Clinical and Nursing Research 2024年第4期8卷 154-162页

作者： Yingying Yang Alita R.Conde Institute of Health Sciences and Nursing Far Eastern UniversityManila 1015Philippines

Objective: To validate the effectiveness of a family-Centered Empowerment Model (FCEM) health education through WeChat on medication compliance and blood pressure among elderly hypertensive patients in rural areas. Methods: One hundred and two rural elderly hypertensive patients aged 65-80 years were selected and randomly divided into an experimental and control group of 51 each. The control group implemented conventional health education, and the experimental group implemented FCEM health education through WeChat platform for 4 consecutive weeks. The Therapeutic Adherence Scale for Hypertensive Patients (TASHP) scores and blood pressure measurements were compared between and within the two groups. Results: After the intervention, there were significant differences in medication compliance and blood pressure between the two groups (P 0.05). In the experimental group, there were significant differences in medication compliance and blood pressure before and after the intervention (P < 0.001). Conclusion: The FCEM health education through an online social platform significantly improved medication compliance and led to effective blood pressure control in rural elderly hypertensive patients. Therefore, as an effective, safe, and economical model, it is also necessary to explore its effectiveness in improving health problems in other chronic diseases and other age groups.

关键词： family support Empowerment Hypertension Elderly Medication compliance

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Literature Review on support for Children and Families Experiencing Parental Bereavement

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Open Journal of Nursing 2024年第4期14卷 139-163页

作者： Rurie Namiki Keita Sasaki Iku Taniguchi Rie Wakimizu Department of Nursing Science Graduate School of Comprehensive Human Sciences University of Tsukuba Ibaraki Japan Department of Child Health Care Nursing Division of Health Innovation and Nursing Faculty of Medicine University of Tsukuba Ibaraki Japan

Purpose: This study aimed to understand the actual nursing support in a wide perspective by reviewing overseas literature on support for children who have experienced parental bereavement and their families. The goal was to identify future challenges in nursing support in clinical practice in Japan. Method: Literature searchable as of May 2023 was retrieved using PubMed, resulting in 11 relevant articles. Result: The results revealed the following: 1) For support provided to children, 13 codes were condensed into 5 subcategories and 4 categories. 2) For support provided to families, 36 codes were condensed into 11 subcategories and 4 categories. Conclusion: Open communication was found to be essential for supporting children and their families who have experienced parental bereavement. Moreover, involvement of multiple professions facilitated the provision of specialized support to address diverse needs of children and families, playing a crucial role in overcoming grief. Additionally, the effectiveness of support systems for bereaved families highlighted the need for nursing professionals in Japan to gain knowledge through learning opportunities and to establish a multi-disciplinary approach to support, thus indicating future challenges in nursing support.

关键词： Terminal Care family support Child Parental Death Palliative Care

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support from Healthcare Professionals for Couples/Partners Undergoing Assisted Reproductive Technology in Japan: A Literature Review

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Open Journal of Nursing 2023年第12期13卷 875-889页

作者： Mikio Watanabe Naohiro Hohashi Division of family Health Care Nursing Graduate School of Health Sciences Kobe University Kobe Japan

Background and Purpose: A growing number of couples/partners have been undergoing assisted reproductive technology (ART) in Japan. The purpose of this study was to clarify the support from healthcare professionals based on the support vectors in the family Care/Caring Theory proposed by Hohashi (2015) through a literature review. Methods: Using Ichushi-Web, we searched for original articles using the keywords “assisted reproductive technology”, “infertility”, “family”, “couple”, “nursing”, “care”, and “support”. Thirteen articles suitable for the purpose of this study were subjected to content analysis. family support was encoded and grouped into subcategories and categories, and classified according to support vectors. Results: A total of 21 categories of support from healthcare professionals was extracted. Intervention for family internal environment included seven categories, such as “Nursing professionals stay close to females”. Intervention for family system unit included five categories, such as “Nursing professionals adjust couple/partner relationships”. Intervention for micro system only included “Nursing professionals provide opportunities for peer support to the couples/partners” and intervention for macro system only included “Nursing professionals encourage medical doctors to relate to females”. Intervention for family chrono environment included seven categories, such as “Healthcare professionals resolve female’s anxieties”. Conclusion: The support from healthcare professionals could be organized by the support vectors of family Care/Caring Theory, but intervention for supra system (culture, religion, etc.) was lacking. Moreover, because most support was directed toward females or couples/partners, male-focused direct and/or indirect support are also needed. .

关键词： Assisted Reproductive Technology Infertility family support family Care/Caring Theory Literature Review

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Social support and Adolescents’ Alcohol Use: An Integrative Literature Review

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Health 2016年第12期8卷 1166-1177页

作者： Ayman M. Hamdan-Mansour Psychiatric Mental Health Nursing Department Community Health Nursing School of Nursing The University of Jordan Amman Jordan

The trajectories at treatment of alcohol use and abuse among adolescents have become a major health concern. The purpose of this paper was to discuss alcohol use and abuse among adolescents and its relationship to social support. Integrative review has been utilized to address the issue. There is a presentation of findings from research examining social support concepts and their relationship to adolescents’ alcohol use and abuse. Treatment requires awareness of underlying causes in order to establish effective treatment approaches. Determining these underlying causes requires adequate knowledge of family, peers, and societal influences on adolescents’ alcohol use and abuse. Health professionals across disciplines have an important role in implementing multidisciplinary interventions. The purpose of this paper was to discuss alcohol use and abuse among adolescents and its relationship to social support. Results, controversies and concerns raised by the reported results are addressed. Implications for future research are delineated.

关键词： Adolescents Alcohol Abuse Social support Peer Pressure family support

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Process of Patients Telling Children about Newly Diagnosed Breast Cancer

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Open Journal of Nursing 2020年第6期10卷 598-612页

作者： Ikue Shiino Kumi Suzuki Yodogawa Christian Hospital Nursing Osaka Japan Osaka Medical College Faculty of Nursing Osaka Japan

Objective: This study aims to determine the process of patients with newly diagnosed breast cancer in Japan telling their children about the disease, and how they have thought about it after the diagnosis. Methods: Semi-structured interviews were conducted with 15 patients with newly diagnosed breast cancer who had 3- to 14-year-old children. Narratives of participants about how they told their children about the disease were analysed by a qualitative and descriptive study design using the Modified Grounded Theory Approach (M-GTA). Results: In the process by which patients with newly diagnosed breast cancer tell their children about the disease, participants were [Maintaining mental balance in the face of the threat of the cancer] after the breast cancer diagnosis, and used the “Facing the cancer through the relationship with the children” as the core category in the process. The participants had [Determined to tell the children about the disease], while [Being worried about the influence of cancer on the children], [Thinking about the benefits of not hiding the cancer], and [Feeling difficulty in communicating the diagnosis of cancer to their children]. They were [Encouraged to tell about the disease to the children] by people around them, and did tell the children that they had a “disease” or “cancer”. The participants who told the children that they had the disease while [Determining the impact on the children] repeated the [Making herself look unconcerned] in the process. Those who told the children that they had cancer while [Determining the impact on the children] repeated [Talking openly about cancer and death] between parents and children. Conclusions: The participants came to face their own cancer by maintaining mental balance in the face of the threat of the cancer and telling their children about the disease. Nurses need to assist these patients to be able to deal openly with their children from the early stage of the diagnosis and sol

关键词： Breast Cancer Telling Children Relationship with the Children family support Modified Grounded Theory Approach

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