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family empowerment and associated factors in Japanese families raising a child with severe motor and intellectual disabilities

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International Journal of Nursing Sciences 2018年第4期5卷 370-376页

作者： Rie Wakimizu Hiroshi Fujioka Kaori Nishigaki Akemi Matsuzawa Department of Child Healthcare Nursing Division of Health Innovation and NursingFaculty of MedicineUniversity of TsukubaIbarakiJapan Department of Nursing Faculty of Health SciencesIbaraki Prefectural University of Health SciencesIbarakiJapan Department of Child Health Nursing Graduate School of Nursing SciencesSt.Luke's International UniversityTokyoJapan Department of Nursing Ibaraki Christian UniversityIbarakiJapan

Objectives:family caregivers raising children with severe motor and intellectual disabilities(SMID)experience the enormous burden of *** concept of family empowerment is one of the important assessment indexes of family nursing from the perspective of providing comprehensive support for these *** objective of this study was to identify the factors associated with the empowerment of families raising a child with SMID in ***:We conducted a nationwide questionnaire survey involving 1659 primary caregivers raising a child with SMID through 89 special *** assessed the main outcomes using the family empowerment Scale(FES).We then conducted a multiple linear regression analysis to reveal the factors associated with family ***:In total,1362 primary caregivers were included in our *** results show that factors contributing to high FES scores are higher age of the primary caregiver,higher education,greater recognition of regional support,lower childcare burden,higher utilization of home visit services,higher usage of a childcare institution,higher household income,and stronger family ***:Healthcare professionals should carefully assess the state of family empowerment of the primary caregivers who are younger and those who have low education,low household income,high childcare burden,and fragile bonding with the ***,they should encourage such families to use regional support resources for *** is,policy makers should consider ways to promote home visits and institutional services for the care of children with SMID,aiming especially for the provision of well-coordinated care and services.

关键词： Caregivers Child care Disabled children family empowerment Home nursing Intellectual disability Japan Social supports

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family empowerment and quality of life of parents raising children with Developmental Disabilities in 78 Japanese families

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International Journal of Nursing Sciences 2017年第1期4卷 38-45页

作者： Rie Wakimizu Keiko Yamaguchi Hiroshi Fujioka Department of Child Health Care Nursing Division of Health Innovation and NursingFaculty of MedicineUniversity of Tsukuba1-1-1 TennodaiTsukuba CityIbaraki 305-8575Japan Department of Nursing Science Doctor's Program Graduate School of Comprehensive Human SciencesUniversity of Tsukuba1-1-1 TennodaiTsukuba CityIbaraki 305-8575Japan Department of Nursing Tsukuba International University6-8-33 ManabeTsuchiura CityIbaraki 300-0051Japan

Objectives: The families of these children experience distress both at the time of diagnosis and afterward.A top priority is to understand family empowerment,family function,and family members' quality of life (QoL) and to effectively support these families in *** objective of this study was to assess the actual conditions of families living with children having DDs and to explore the factors associated with family empowerment and parents' ***: We surveyed ninety-three parents (78 mothers,15 fathers) from 78 families which lived with children with DDs in the capital region of *** assessed two main outcomes using the Japanese versions of the following instruments: family empowerment Scale (FES),World Health Organization Quality of Life 26 (WHOQOL26),and other six *** and multiple regression analyses were ***: No medication,cooperation with child rearing,assistance from a developmental support center,solved problems related to child rearing,and higher scores in Problem Solving contributed to higher FES *** WHOQOL26 scores were related to being a full-time housewife,higher self-esteem,no developmental support,a broad emotional support network,higher scores in Problem Solving and Role Function,and lower scores in Affective Reaction and General ***: We revealed that family empowerment and QoL of parents rearing children with DDs in Japan were affected by various subscales of family function and other family *** interventions for improving family empowerment and QoL should be researched in the future.

关键词： Developmental disabilities family empowerment Japan Multiple regression analysis Quality of life Social support

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家庭增能：促进农村精神障碍者社会融入的行动研究

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社会工作 2024年第3期

作者：高万红师艺萌

农村精神障碍者在社区康复中普遍面临公共服务供给不足与社会排斥的双重问题。本研究基于在昆明市Y县两个自然村实施的精神障碍社区康复项目，通过行动研究探索农村精神障碍者社区康复和社会融入的可行路径。研究发现，农村精神障碍者... 详细信息

农村精神障碍者在社区康复中普遍面临公共服务供给不足与社会排斥的双重问题。本研究基于在昆明市Y县两个自然村实施的精神障碍社区康复项目，通过行动研究探索农村精神障碍者社区康复和社会融入的可行路径。研究发现，农村精神障碍者社会融入的基本服务单元是家庭，促进其社会融入的基本策略是家庭增能，包括家庭能力提升与社区情境改善两方面，一方面提升家庭在疾病管理、情绪管理、职业技能、社交技能以及身份认知方面的能力，另一方面为家庭提供可及的医疗服务、社区参与和就业机会，减少社会污名；农村精神障碍者的社会融入是一个多维的阶梯式情境实践过程，家庭增能可激发家庭社区参与的主体性，扩大其社区参与空间，促进康复者行为管理、生计和社会关系的多维社会融入。

关键词：社会融入精神障碍社区康复家庭增能 social inclusion mental health rehabilitation family empowerment

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Roles and Hopes of family Members Living with SMID Children in Japan

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Health 2016年第9期8卷 787-799页

作者： Rie Wakimizu Keiko Yamaguchi Hiroshi Fujioka Department of Child Health Care Nursing Division of Health Innovation and Nursing Faculty of Medicine Uni-versity of Tsukuba Tsukuba City Japan Department of Nursing Science Graduate school of Comprehensive Human Sciences University of Tsukuba Tsukuba City Japan Department of Nursing Faculty of Health Sciences Tsukuba International University Tsuchiura City Japan

The number of children with Severe Motor and Intellectual Disabilities (SMID) receiving medical treatment/recovering at home is rising yearly. Although benefits of this care are emphasized, the stress and duties of family members in the household are extremely great, especially because Japan is becoming a society of nuclear families. In this study, we described the lifestyles of nuclear families providing in-home medical care for children with SMID, focusing on family members’ roles. Roles of mothers, fathers, and siblings of children with SMID were summarized from semi-structured inter-views. As a result, for “the roles of each family member living with a child with SMID”, mothers had five roles, fathers seven, and siblings five. For “the hopes of each family member living with a child with SMID”, parents desired the whole family collaboration in care for children with SMID, and as caregivers, parents’ common thoughts included wanting siblings in order to help care for the child with SMID and wanting siblings to treasure their own lives. Siblings wanted their mother to have some time for rest and expected their fathers to have two main roles. They also expected their grandparents and other siblings to fulfill roles.

关键词： Children with Severe Motor and Intellectual Disabilities (SMID) family Life Interfamilial Roles family empowerment Japan

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