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Ensuring that the outcome domains proposed for use in burns research are relevant to adult burn patients:a systematic review of qualitative research evidence

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Burns & Trauma 2020年第1期8卷 55-66页

作者： Jonathan Mathers Naiem Moiemen Amy Bamford fay gardiner Joanne Tarver Institute of Applied Health Research University of BirminghamBirminghamB152TTUK The Scar Free Foundation Centre for Burns Research Queen Elizabeth HospitalUniversity Hospitals Birmingham NHS Foundation TrustMindelsohn WayEdgbastonBirminghamB152WBUK School of Life&Health Sciences Aston UniversityAston TriangleBirminghamB47ETUK

Background:There have been several attempts to define core outcome domains for use in research focused on adult *** have been based in expert opinion,whilst others have used primary qualitative research to understand patients’perspectives on *** date there has not been a systematic review of qualitative research in burns to identify a comprehensive list of patientcentred outcome *** therefore conducted a systematic review of qualitative research studies in adult ***:We searched multiple databases for English-language,peer-reviewed,qualitative research *** used search strategies devised using the SPIDER tool for qualitative *** review utilized an iterative three-step approach:(1)outcome-focused coding;(2)development of descriptive accounts of outcome-relevant issues;and(3)revisiting studies and the broader theoretical literature in order to frame the review ***:Forty-one articles were *** categorized papers according to their primary *** category with the most papers was adaptation to life following burn injury(n=13).We defined 19 outcome domains across the 41 articles:(1)sense of self;(2)emotional and psychological morbidity;(3)sensory;(4)scarring and scar characteristics;(5)impact on relationships;(6)mobility and range of joint motion;(7)work;(8)activities of daily living and self-care;(9)treatment burden;(10)engagement in activities;(11)wound healing and infection;(12)other physical manifestations;(13)financial impact;(14)impact on spouses and family members;(15)analgesia and side effects;(16)cognitive skills;(17)length of hospital stay;(18)access to healthcare;and(19)speech and *** suggest that sense of self is a core concern for patients that,to date,has not been clearly conceptualized in the burns outcome domain ***:This outcome domain framework identifies domains that are not covered in previous attempts to outline core outcome domains for adult burn rese

关键词： Outcome domains Adult burns Qualitative research Systematic review

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