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Psycho-emotional content of illness narrative master plots for people with chronic illness:Implications for assessment

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World Journal of Psychiatry 2018年第3期8卷 79-82页

作者： andy soundy School of Sport Exercise and Rehabilitation SciencesUniversity of Birmingham

Illness narratives are stories of illness told by patients with chronic illness. One way of studying illness narratives is by considering illness narrative master *** examination of illness narrative master plots has revealed the importance of psycho-emotional information contained within the story that is told. There is a need for research to capture this information in order to better understand how common stories and experiences of illness can be understood and used to aid the mental well-being of individuals with chronic illness. The current editorial provides a suggestion of how this is possible. This editorial identifies that stories can be "mapped" graphically by combining emotional responses to the illness experience with psychological responses of the illness experience relating to hope and psychological adaptation. Clinicians and researchers should consider the evidence presented within this editorial as:(1) A possible solution for documenting the mental wellbeing of individuals with chronic illness; and(2) As a tool that can be used to consider changes in mental well-being following an intervention. Further research using this tool will likely provide insights into how illness narrative master plots are associated together and change across the course of a chronic illness. This is particularly important for illness narrative master plots that are difficult to tell or that are illustrative of a decline in mental well-being.

关键词： Illness narratives Assessment Emotions Psychological adaptation Hope

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The Psychological Processes of Adaptation and Hope in Patients with Multiple Sclerosis: A Thematic Synthesis

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Open Journal of Therapy and Rehabilitation 2016年第1期4卷 22-47页

作者： andy soundy Carolyn Roskell Tracey Elder Johnny Collett Helen Dawes Department of Physiotherapy School of Sport Exercise and Rehabilitation Sciences University of Birmingham Edgbaston Birmingham UK Department of Sport and Health Sciences Faculty of Health and Life Sciences at Oxford Brookes University Oxford UK

Purpose: The purpose of the current research was to review the lived experiences of patients with multiple sclerosis (MS) in order to extrapolate the psychological process of adaptation. Methods: A thematic synthesis was undertaken within 3 phases: systematic search for literature, critical appraisal of included studies and synthesis of research. Results: A total of 47 studies were included in this review, this included 1146 (812 females, 265 males, and 69 unknown) unique patients with MS (aggregated mean age: 49.3 years [30/47 studies], aggregated time with illness: 12.3 years [28/47 studies]). The critical appraisal of research illustrated that the design of the studies and the reference to reflexivity in studies were not well considered. The synthesis was able to identify a primary response of psychological adaptation as well as distinct coping strategies. A model of emotion, hope, and adjustment was identified. Conclusion: Simple processes of adaptation for people with MS can be considered by clinicians and utilised to promote mental well-being in patients. Clinicians and researchers also need to be aware of the important psychological needs of patients during interactions. Discussion and clinical implications are provided.

关键词： Qualitative Meta-Synthesis Adaptation Hope Neurology Multiple Sclerosis

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