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Qualitative evaluation of the outcomes of care and treatment for children and adolescents with nodding syndrome and other epilepsies in Uganda

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Infectious Diseases of Poverty 2019年第2期8卷 93-93页

作者： Catherine Abbo amos deogratius mwaka Bernard Toliva Opar Richard Idro Department of Psychiatry School of Medicine College of Health SciencesMakerere UniversityKampalaUgandd 不详

Background:In 2012,the Ugandan Government declared an epidemic of Nodding Syndrome(NS)in the Northern districts of Gulu,Kitgum,Lamwo and *** guidelines were developed and NS treatment centres were established to provide symptomatic control and ***,a wide gap remained between the predefined care standards and the quality of routine care provided to those *** study is to qualitatively assess adherence to accepted clinical care standards for NS;identify gaps in the care of affected children and offer Clinical Support Supervision(CSS)to Primary Health Care(PHC)staff at the treatment centres;and identify psychosocial challenges faced by affected children and their ***:This case study was carried out in the districts of Gulu,Kitgum,Lamwo and Pader in Uganda from September to December in *** the 5-stage approach of Clinical Audit,data were collected through direct observations and interviews with PHC providers working in public and private-not-for-profit health facilities,as well as with caregivers and political *** qualitative data was analysed using Seidel model of data ***:Clinical Audit and CSS revealed poor adherence to treatment *** affected children had suboptimal NS management resulting in poor seizure control and complications including severe *** causes of these outcomes were frequent antiepileptic drugs stock outs,migration of health workers from their work stations and psychosocial *** was hardly any specialized multidisciplinary team(MDT)to provide for the complex rehabilitation needs of the patients and a task shifting model with inadequate support supervision was employed,leading to loss of skills *** psychosocial and psychosexual issues associated with NS included early pregnancies,public display of sexual behaviours and child ***:Despite involvement of relevant MDT members in the development of multidisciplinary NS

关键词： Nodding syndrome Epilepsy Multi-disciplinary Clinical audit Clinical support supervision Uganda

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