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Social Aspects of the Quality of Life of Persons Suffering from Schizophrenia

Open Journal of Psychiatry 2016年第1期6卷 50-60页

作者： Gitte Lee Mortensen Jayanti De Mads Holme tina neve Per Göran Torell Jonas Eberhard Anthro Consult Aarhus Denmark ReD Associates Copenhagen Denmark Project CHANGE Capital Region Psychiatry Copenhagen Denmark European Federation of Associations of Families of People with Mental Illness (EUFAMI) Leuven Belgium Department of Clinical Science Lund University Lund Sweden Institute of Psychiatry Psychiatry & Neuroscience (IoPPN) King’s College London UK

Background: Several studies have shown that persons with schizophrenia (PWS) suffer from severely reduced quality of life (QoL). Impaired social functioning is a defining characteristic of schizophrenia (SZ) and social cognition deficits affect interpersonal relations and outcomes such as independent living, vocational functioning and employment status. Some studies have demonstrated important socio-cultural aspects of SZ, for instance by examining experiences of SZ in different developing countries and among minority groups in the Western world. The socio-cultural context is central to understanding patients’ experiences in any society, however. Using an anthropological approach, we use qualitative research methods to examine patient perspectives on SZ. Sampling and Methods: In-depth qualitative interviews are carried out with SZ patients in France, the UK and the USA representing diversity in Western mental health systems. Results: To the participants, the most important QoL aspects are close relations and support from loved ones, a safe home and comfort zone, and meaningful daily activities. Normalisation and independence act as central themes to patients’ QoL and hopes for social integration. The participants need a buffer zone consisting of social relations, a home and daily occupation that is flexible and may balance issues of equality/inequality, abnormality/normality, and dependence/independence. Conclusion: By using participatory methods, PWS may be involved in shaping their own treatment and recovery plans based on what is subjectively meaningful and beneficial to their mental health. QoL and functioning are closely linked to the socio-cultural context in which health care structures go hand in hand with health care cultures that shape patients’ expectations and preferences.

关键词： Schizophrenia Quality of Life Socio-Cultural Aspects Patient Perspectives Qualitative Research

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