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National Spinal Cord Injury Registry of Iran(NSCIR-IR)-a critical appraisal of its strengths and weaknesses

Chinese Journal of Traumatology 2019年第5期22卷 300-303页

作者： Mahdi Sharif-Alhoseini Zahra Azadmanjir Mohsen Sadeghi-Naini Zahra Ghodsi Khatereh Naghdi Mahdi Mohammadzadeh Amir AzarHomayoun Kazem Zendehdel Moein Khormali farideh sadeghian Seyed Behzad Jazayeri Mojtaba Sehat Habibollah Pirnejad Edward C.Benzel Gerard O'Reilly Michael G.Fehlings Alexander R.Vaccaro Vafa Rahimi-Movaghar Sina Trauma and Surgery Research Center Tehran University of Medical SciencesTehranIran Toronto Western Hospital University Health NetworkTorontoOntarioCanada Department of Orthopaedic Surgery The Rothman InstituteThomas Jefferson UniversityPhiladelphiaUSA Brain and Spinal Cord Injury Research Center Neuroscience InstituteTehran University of Medical SciencesTehranIran Department of Health Information Management School of Allied Medical SciencesTehran University of Medical SciencesTehranIran Trauma Research Center Kashan University of Medical SciencesKashanIran Cancer Research Center Cancer InstituteTehran University of Medical SciencesTehranIran Students'Scientific Research Center Tehran University of Medical SciencesTehranIran Center for Health Related Social and Behavioral Sciences Research Shahroud University of Medical SciencesShahroudIran Department of Health Information Technology Urmia University of Medical SciencesUrmiaIran Cleveland Clinic Foundation Department of NeurosurgeryClevelandOHUSA Department of Epidemiology and Preventive Medicine School of Public Health and Preventive MedicineMonash UniversityMelbourneAustralia

The National Spinal Cord Injury Registry of Iran(NSCIR-IR)is a not-for-profit,hospital-based,and prospective observational registry that appraises the quality of care,long-term outcomes and the personal and psychological burden of traumatic spinal cord injury in *** validity in every registry includes rigorous attention to data *** quality assurance is essential for any registry to make sure that correct patients are being enrolled and that the data being collected are *** reviewed strengths and weaknesses of the NSCIR-IR while considering the methodological guidelines and recommendations for efficient and rational governance of patient *** summary,the steering committee,funded and maintained by the Ministry of Health and Medical Education of Iran,the international collaborations,continued staff training,suitable data quality,and the ethical approval are considered to be the strengths of the registry,while limited human and financial resources,poor interoperability with other health systems,and time-consuming processes are among its main weaknesses.

关键词： Spinal cord injuries Injury registries Data accuracy Iran

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