Stigma and epilepsy in onchocerciasisendemic regions in Africa:a review and recommendations from the onchocerciasisassociated epilepsy working group

作     者：Sarah O'Neill Julia Irani Joseph Nelson Siewe Fodjo Denis Nono Catherine Abbo Yasuaki Sato Augustine Mugarura Housseini Dolo Maya Ronse Alfred K.Njamnshi Robert Colebunders O'Neill Sarah;Irani Julia;Siewe Fodjo Joseph Nelson;Nono Denis;Abbo Catherine;Sato Yasuaki;Mugarura Augustine;Dolo Housseini;Ronse Maya;Njamnshi Alfred K.;Colebunders Robert

作者机构：CRISS-School of Public HealthUniversite Libre de Bruxelles and LAMC Faculte de Philosophie et de Sciences Sociales Universite Libre de BruxellesBrusselsBelgium Department of Public healthInstitute o f Tropical MedicineAntwerpBelgium Global Health InstituteUniversity of AntwerpAntwerpBelgium Department of Mental HealthAustrian Partnership Programme in Higher Education and Research for Developm ent(APPEAR)Project&AVSI FoundationGulu UniversityGuluUganda Department of PsychiatryMakerere UniversityKampalaUganda Department of Environmental Science and TechnologyOsaka Sangyo UniversityOsakaJapan Epilepsy Support Association of UgandaWakisoUganda Department of NeurologyYaounde Central Hospital/FMBSThe University of Yaounde IBrain Research Africa Initiative(BRAIN)YaoundeCameroon 

出 版 物：《Infectious Diseases of Poverty》 (贫困所致传染病（英文）)

年 卷 期：2019年第8卷第3期

页      面：21-31页

核心收录：

学科分类：1004[医学-公共卫生与预防医学(可授医学、理学学位)] 1002[医学-临床医学] 1001[医学-基础医学(可授医学、理学学位)] 10[医学] 

基　　金：RC received funding from the European Research Council(grant No.ERCPoC 768815) VUR UOS and Jansen pharm aceuticals for organising the workshop,SO received funding at the Unit of Medical Anthropology,Department of Public Health,Institute of Tropical Medicine Antwerp from the Flemish Ministry of Sciences and Innovation in Belgium(grant No.SOFI 2014-2017) 

主　　题：Epilepsy Onchocerciasis Stigma,Anti-epileptic treatment Nodding syndrome Discrimination Misconception,Africa 

摘      要：Background:In onchocerciasis-endemic areas,particularly in those with a sub-optimal onchocerciasis control programme,a high prevalence of epilepsy is *** onchocerciasis and epilepsy are stigmatizing *** first international workshop on onchocerciasis-associated epilepsy(OAE)was held in Antwerp,Belgium(12-14 October 2017)and during this meeting,an OAE alliance was *** this paper,we review what is known about epilepsy-associated stigma in onchocerciasis-endemic regions,and present the recommendations of the OAE alliance working group on *** body:For this scoping review,literature searches were performed on the electronic databases PubMed,Scopus and Science Direct using the search termsepilepsy AND onchocerciasis AND stigma.Hand searches were also undertaken using Google Scholar,and in total seven papers were identified that addressed epilepsy-related stigma in an onchocercisasis-endemic *** to the limited number of published research papers on epilepsyassociated stigma in onchocerciasis-endemic areas,other relevant literature that describes important aspects related to stigma is *** thematic presentation of this scoping review follows key insights on the barriers to alleviating the social consequences of stigma in highly affected onchocerciasis-endemic areas,which were established by experts during the working group on stigma and discrimination at the first international workshop on *** themes are:knowledge gaps,perceived disease aetiology,access to education,marriage restrictions,psycho-social well-being,burden on the care-giver and treatment seeking *** on the literature and expert discussions during the OAE working group on stigma,this paper describes important issues regarding epilepsy-related stigma in onchocerciasis-endemic regions and recommends interventions that are needed to reduce stigma and discrimination for the improvement of the psycho-social well-being of persons with ***