Improved Health-related Quality of Life in Children and Adolescents with Type 1 Diabetes： A Two-year Prospective Family Intervention RCT Study
Improved Health-related Quality of Life in Children and Adolescents with Type 1 Diabetes： A Two-year Prospective Family Intervention RCT Study作者机构：Department of Pediatrics Institute of Clinical Sciences Sahlgrenska Academy at The University of Gothenburg The Queen Silvia Children's Hospital Sahlgrenska University Hospital Gothenburg Sweden and V&rdalinstitutet The Swedish Institute for Health Sciences Sweden Sahlgrenska University Hospital Gothenburg Sweden
出 版 物：《Journal of Health Science》 (健康科学（英文版）)
年 卷 期：2017年第5卷第2期
页 面：45-55页
学科分类：0710[理学-生物学] 07[理学] 09[农学]
主 题：HRQOL family intervention RCT HbAlc type 1 diabetes children--adolescents glycemic control.
摘 要：The aim of this two-year prospective RCT-study was to evaluate children＇s HRQOL after a family intervention providing support with four sessions for six months following diagnosis of type 1 diabetes （T1DM）, with follow-up sessions at 12, 18, and 24 months. Ninety-eight children aged 3-15 years, recently diagnosed with T1DM, participated with their parents. At six and 24 months after diagnosis, the child, mother, and father independently completed the PedsQL 4.0 Generic Scale and PedsQL 3.0 Diabetes Module Scale, and the child＇s glycemic control （HbAlc value） was measured. After six months, children in the intervention group had better generic HRQOL than the control group （P 〈 0.03）. At 24 months, these children and their fathers rated the child＇s diabetes-specific HRQOL as significantly better （P 〈 0.01, P 〈 0.04） and the child＇s worry as lower （P 〈 0.02, P 〈 0.03） compared to the control group. Communication skills improved significantly over time in the intervention group （P 〈 0.01）. There were no significant differences between control and intervention group regarding glycemic control, measured as HbA 1 c, either at 6 or 24 months. This study highlights the importance of psychological support after the onset of T1DM, especially facilitating communication skills within the family in the immediate and ongoing care.
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