When a 17-Year-Old Girl Is Diagnosed with Myalgic Encephalomyelitis: A Case Study from the Swedish Health Care System—A Parent Perspective
When a 17-Year-Old Girl Is Diagnosed with Myalgic Encephalomyelitis: A Case Study from the Swedish Health Care System—A Parent Perspective作者机构：Department of Music Pedagogy and Society Royal College of Music Stockholm Sweden Department of Clinical Neuroscience Karolinska Institutet Solna Sweden Center for Social Sustainability CSS Karolinska Institutet Solna Sweden Amelie Clinic and Karolinska Institutet Solna Sweden ME-Center Bragée Clinics Stockholm Sweden Hä lsosjä len Mö lndal Gö teborg Sweden Stress Research Institute Stockholm University Stockholm Sweden Karolinska Institutet Solna Sweden Sophiahemmet Barnsjukhuset Martina Sweden Analytical Chemistry and Neurochemistry Department of Chemistry—BMC Uppsala University Uppsala Sweden The ME/CFS Collaborative Research Centre at Uppsala University Uppsala Sweden
出 版 物：《Case Reports in Clinical Medicine》 (临床医学病理报告（英文）)
年 卷 期：2022年第11卷第8期
页 面：280-296页
学科分类：0502[文学-外国语言文学] 050201[文学-英语语言文学] 05[文学]
主 题：Case Study Myalgic Encephalomyelitis Parent Perspective Swedish Health Care
摘 要：This case study presents different strategies that were explored by the patient’s mother (who is a researcher in music and medicine) when her 17-year-old daughter was diagnosed with ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome (CFS). ME is not widely recognized in the Global as well as the Swedish population at large, and within healthcare, there are no standardized recommended treatments, partly due to the lack of published evidence-based studies. This case study aims to provide insights into how the Swedish healthcare system works, how different clinics and hospitals within it operate and interconnect;and how these contribute to health outcomes after 15 months of treatment.
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